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We are here to help people with CF get the insurance coverage they need. Hear how the Foundation helped the Cox family.

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Newborn Screening: Info for New Parents

Questions and Answers About CF Newborn Screening

Newborn Screening Newborn
Congratulations on the birth of your baby.

You may be on this site because your baby had an abnormal, or positive, newborn screen for cystic fibrosis (CF).

We know this can make parents worry. We have created this section to answer some of the most common questions and help guide you through your next steps.

We hope this information eases your mind with both clear answers and the assurance that you are not alone.

Thousands of families go through this process each year. In the end, most babies with a positive newborn screen do NOT have CF.

While we have done our best to answer the most common questions, if you have more specific questions you should talk with a CF newborn screening expert such as a doctor, nurse specialist or genetic counselor. You can find such an expert by contacting your nearest CF Foundation-accredited care center.

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The information in this section meets the Cystic Fibrosis Foundation's guidelines and standards for education materials as reviewed by the Foundation's Education Committee.

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Updated 1/19/14

The Cystic Fibrosis Foundation is an accredited charity of the Better Business Bureau.