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Get Help When You Need It

  • See if a friend or family member can help you with one infusion a day, such as your evening infusion, so you can go to sleep. Doing IVs all alone takes a toll on your body and mind. IV antibiotics are more effective when you’re rested. You might even ask a family member or friend to help you with one meal a day.

  • If you’re always very tired or feeling completely overwhelmed by home care, it may not be best for you to continue treatment at home. This is especially true if you live alone and have no support.

  • Some people with CF can tell when their lungs need a tune-up. Try planning a home IV tune-up when you have extra support, for example, when family is visiting or over the holidays. If this isn’t possible, maybe a friend or family member can stay with you during the time you are receiving treatment to help out.

  • Avoid crises. If you have signs of infection, an allergic reaction or bleeding from the sites of IV lines or G-tubes (feeding tubes), make sure you call your CF health care team or home agency immediately, or call 911 in case of emergencies.

  • Have a back-up plan. Ask for extra oxygen tanks in case the power goes out or the concentrator breaks. Always call your home care agency if you’re not sure what to do.

Updated 8/7/13

 



The Cystic Fibrosis Foundation is an accredited charity of the Better Business Bureau.