Don’t be so hard on yourself. You simply can’t do and be all things — and that’s OK. You can only promise to do your best. Hopefully, these hints and ideas will help you avoid overload.
- Remember that CF takes more time and energy than almost any other disease. You are being asked to be superhuman just to live. It’s not fair, and you have the right to feel overwhelmed. If you can’t do it all, or if you slip on your routine, don’t beat yourself up.
Sometimes sleep is most important. You are probably not being lazy. If you are being lazy, do some soul searching as to why. You have reasons for doing what you choose to do. Just gently coax yourself back on track. It’s never too late. Tell yourself how important your future is and how managing your time today will help add to your tomorrows.
- Plan mini-vacations. Sometimes taking a road trip or weekend getaway helps break us from our monotonous routine. Doing your CF stuff at the beach, at a friend’s house or in a nice hotel can feel positively different. The change of scenery re-energizes us to recommit to our daily rituals.
- It’s very normal for people with CF to feel a sense of urgency. We want to see, do and experience as much as we can. Deep inside, we may fear that our time on earth will be shortened. If that’s the case, discovering your own time-management strategies now is critical.
Remember that quality is more important that quantity. Doing one thing well and unrushed — to stay in the moment — is much more enjoyable than having scattered thoughts of what’s next.
A more manageable schedule increases quality of life, and time for health care, so in turn you will increase quantity as well. And with new treatments on the horizon, it’s helpful to stay optimistic that you’ll be around for a while. Memorize the quote, “Hope is patience with the lamp lit!” (Tertullian)
- CF can be a selfish disease. Sometimes we may want to spend our time for others, but our health needs do not allow that. It’s a process to accept this. The vast majority of your supporters will understand that you have to make yourself your priority. They’ll want you to, so they can keep loving you for the long haul.
- CF invites us to “subvert the dominant paradigm,” or, in plain English, challenge social norms. American culture says, “An idle mind is the devil’s workshop.” Whether you have CF or not, is that really true? Why? It’s okay for us to schedule downtime, rest and relaxation without guilt. We’re lucky to learn that lesson. It’s good for the soul and the body!
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