"I am a procrastinator my nature. But I’ve found having a set routine up to the very minute is helpful. Every day my alarm goes off at 8 a.m., and I don't allow myself to get out of bed past 8:05. I start my treatment no later than 8:20 a.m. and make sure I finish by 9:30.
“This is how my whole day goes. I do not let myself start my afternoon or evening treatment after a certain time, otherwise the rest of my day is off. The more routines I set, the more I am able to manage normal things like socializing and spending time with my fiancé."
“I use a routine/medication checklist. I print the list and put it in a sheet protector. Each day I use a dry erase marker and slowly check off each part of my routine. In late-stage CF, there is a lot to remember. This checklist helps me relax and not have to worry about what I am forgetting.
“I was working part time for a few years and returned to full time almost two years ago. It helps to be regimented. On weekdays, my schedule is usually wake up and do a sinus rinse immediately (it's a quicker alternative to coffee), then saline and vest. Then I’ll eat breakfast since I don't like vesting on a full stomach. Then TOBI® or Cayston®, inhalers, then on to normal getting-ready stuff, like taking a shower, etc.
“I've gotten into the habit of taking all my BID [twice a day] pills with breakfast and dinner. This supposedly helps the absorption since it's combined with food and enzymes. I'll take an inhaler throughout the day at work when I start feeling extra tight or congested, and can luckily close my office door and blinds for 5 minutes while I take Cayston® in the afternoon.
“I always keep enzymes and snacks in my desk, and I'll send emails to my personal email account when I need to bring in a new bottle. At night, I'll usually get my treatments and vest in after my dinner feels digested, or before I eat if I have something time-consuming later in the evening.