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Know What to Do

Just One More Thing to Manage 

You have handled lots of challenges up to now and you will handle this one too.  Remember, you can look forward to feeling better and having better control of your lung disease with good CFRD management.

Rely on your CF team to help you. You will want to get to know the endocrine team (diabetes specialists) and begin learning how to manage your blood sugars with medication — usually insulin — and your diet.

If you have CFRD, you should be seen every 3 months by an endocrine team with expertise in diabetes. There should be good communication between the diabetes team and your CF team.

Make the Link 

If you have just been diagnosed with CFRD, this manual of care should be the FIRST publication that you study to learn about how to manage CFRD.  Managing Cystic Fibrosis Related Diabetes (CFRD): An Instruction Guide for Patients and Families, 5th edition. Your endocrine and CF teams may also have a copy of this resource for you.

You can also learn more about CFRD in CF Education Webcast Series

  1. Diagnosis and Screening 
  2. Daily Management 
  3. Illness, Transplant and Pregnancy 
  4. Living with CFRD  

What Else You Can Do 

Make a list of questions to ask your endocrine team when you have your first appointment with them. Here are a few you may want to think about:

  • Is my insurance going to cover my new medications and supplies for testing?
  • I love “sweets”! Is this the end of being able to eat them? 
  • I have heard about insulin pumps. Would a pump be right for me?

Additional Resources 

Check out this medial journal article if you want more in-depth information on CFRD:

Moran A, Brunzell C, Cohen R, et al: “Clinical Care Guidelines for Cystic Fibrosis-Related Diabetes.” A position statement of the American Diabetes Association and a clinical practice guideline of the Cystic Fibrosis Foundation, endorsed by the Pediatric Endocrine Society. Diabetes Care Vol 33, No 12, pp 2697-2708, 2010.  

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Updated 12/27/12

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