Know What to Do
Just One More Thing to Manage
You have handled lots of challenges up to now and you will handle this one too. Remember, you can look forward to feeling better and having better control of your lung disease with good CFRD management.
Rely on your CF team to help you. You will want to get to know the endocrine team (diabetes specialists) and begin learning how to manage your blood sugars with medication — usually insulin — and your diet.
If you have CFRD, you should be seen every 3 months by an endocrine team with expertise in diabetes. There should be good communication between the diabetes team and your CF team.
Make the Link
If you have just been diagnosed with CFRD, this manual of care should be the FIRST publication that you study to learn about how to manage CFRD. Managing Cystic Fibrosis Related Diabetes (CFRD): An Instruction Guide for Patients and Families, 5th edition. Your endocrine and CF teams may also have a copy of this resource for you.
You can also learn more about CFRD in CF Education Webcast Series
What Else You Can Do
Make a list of questions to ask your endocrine team when you have your first appointment with them. Here are a few you may want to think about:
Check out this medial journal article if you want more in-depth information on CFRD: