Find Community Support

“Life is 10 percent what you make it and 90 percent how you take it.” Irving Berlin’s famous quote could easily apply to the attitude required to manage the unique practical, financial and emotional needs that come with living with CF.

Tracking down the information you need can be exhausting, even when you are feeling your best. You may have to fill out long applications, copy important documents, spend hours on the phone or online, speak to many people and, most important, wait patiently to find exactly what you need.

But don’t despair! You belong to an extremely motivated, supportive and organized community. Thanks to dedicated family members, volunteers and friends, people with CF have access to thousands of resources, including college scholarships and free tuition, help with exercise costs, along with public assistance, such as food stamps and disability income.

You and your close supporters can begin your resource search today. Consider the helpful tips in this section as you navigate the available services in your community.

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Thank you to Isabel Stenzel Byrnes, MSW, an adult with CF, for writing this section.