Cystic Fibrosis Foundation - Click here for homepage
Stay Informed  |  Volunteer  |  Clinical Trials

In This Section

Care Center Data Home
Select a Care Center
Questions Answered
Patient Registry Report
Quality Improvement Initiative

Quick Links

Find a Chapter

Get Connected

Speak out. Get involved. Inspire action. Hear one mom's story about how easy it is to make a difference in the lives of people with CF through advocacy.
Speak out. Get involved. Inspire action. Hear one mom's story about how easy it is to make a difference in the lives of people with CF through advocacy.

Join us on Facebook!  Facebook 
Follow us on Twitter!  Twitter 
  Google+ 
Subscribe to our channel on YouTube!  YouTube  


Print

Quality Improvement Initiative

Successful companies use quality improvement methods to create safer and better products. Today, health organizations are using similar methods to improve the quality of care they provide.

To inspire action and strengthen partnerships, the Foundation provides care center data for key health measures for each of its accredited care centers. These include:

  • Lung function as measured by FEV1% predicted; 
  • Nutritional status as measured by body mass index or BMI;
  • Percent of people with CF screened for CF-related diabetes (CFRD); and
  • Percent of people with CF who had the recommended four clinic visits, one sputum or throat culture and two lung function tests (PFT) per year.

The data is a tool for people with CF, their families and care centers to work together to improve CF care. However, this data only tells part of the story. It is important for you and your care center to become partners and take action to improve your or your child's care.

When people with CF and their families partner with their care center staff — quality always improves.

The Foundation has created a Quality Improvement Toolkit. Like the care center health data, this toolkit is to help people with CF, their families and care centers become successful partners in improving the quality of CF care.

To learn more about quality improvement in CF care, watch the Webcast, "One Team's Story: Raising the Bar of CF Care," "Quality CF Care is More Than the Numbers," "Partnering for Improvement" and the "Partnering for Care" series. Plus, you can read "It's All About Suzy: Quality Improvement in CF Care" and the Patient Registry Report.

back to top

Updated 01/26/12

Register for Great Strides!
Strategic Planning Initiative

The Cystic Fibrosis Foundation is an accredited charity of the Better Business Bureau.