In This Section
Mrs. Jen Milewski
|1261 West 86th Street|
|Indianapolis, IN, 46260|
|T: (317) 202-9210|
|T: (800) 622-4826|
|F: (317) 202-9215|
Become a Partner in our Progress
Cystic fibrosis is a life-threatening genetic disease that ravages the lungs and digestive system. Today there is no cure, but we at the Indiana Chapter are determined to change that.
The CFF relies on you, our Partner in progress, to provide the vital resources necessary to carry out our mission: to cure and control Cystic Fibrosis.
Only with your support are we able to advance new treatments from the test tube to the patients who need them, make sure people with CF get the best medical care possible to stay healthy, and to pursue every opportunity for promising research that can lead us to a cure.
On February 27th, the CFF announced that Vertex had initiated the Phase 3 study of the combination of VX-809 with Kalydeco in patients with CF who have two copies of the Delta F508 mutation. Perhaps even more important: the FDA is allowing Vertex to move forward with a six-month trial (about one half the normal trial). This could significantly accelerate the submission of a new drug application with this combination for FDA review and possible approval.
For the percentage of cf patients with the Delta F508 mutation....this is HUGE!!
Courtesy of Melissa DeWitt Photography 1
Sweet little Madeline (Maddy) Harkenrider is our 2013 Partner In Progress poster child.
Maddy is all-girl and at 18-months already loves her baby dolls, playing dress up and watching Little Einsteins and Sophi the First on television. Her Mom says she’s a professional sleeper often “sawing logs” until 9 or 10 in the morning. Attached to her arm (figuratively) is her favorite blanket, her “maney” and wrapped around her finger are her three older brothers!
Maddy love spending time with her Mamaw and Papaw and of course, is crazy for her Daddy, who she also has wrapped around her finger! Maddy lives with her Mom, Dad and her three brothers in Columbia City, Indiana. Maddy has cystic fibrosis.
There are 3 simple ways to give.
First, click here to donate to our Partners in Progress Annual Fund
Second, send a check in any amount to our office at 1261 W. 86th Street, Suite E-2, Indianapolis, IN 46260. Or call our office with a credit card (800) 622-4826.
Third, start your own individual fundraising campaign for the Annual Fund.
There are more than 645 Hoosiers living with cystic fibrosis daily. Maddy is just one of them. Become a Partner in our Progress today. Maddy and all our other amazing cf adults and children Thank You for your continued support.