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Greater New York Chapter
Long Island Office
Camryn of Southold, NY
Hope in Motion
This is an exciting time at the Cystic Fibrosis Foundation! Due to the recent advances in research, including the breakthrough of the drugs VX-770 and VX-809, hope has been truly set in motion. The Long Island CF Office staff proudly partners with volunteers to achieve our mission - controlling and ultimately curing cystic fibrosis. Click here for more information on VX-770 and VX-809.
The cure is on the horizon, but we still need your help!
Form a Great Strides team and walk with us!
Volunteer in our office or at one of our events
Recruit companies and individuals to join us in the fight
Join an event committee; some events include our annual golf outings, galas, walks, and young professionals events.
Apply for one of our boards, including the Greater New York Board of Directors, our newly forming LI Advisory and Young Professionals Committees or our high school Student Youth Board
Join us! Together, we can continue adding tomorrows every day to the lives of people with CF.
To donate to a team or walker, click here. To become an official Great Strides sponsor or to volunteer, please contact the Long Island Office at 516-827-1290 orlong-island@cff.org.
Chapter Events
Register Today and Take Great Strides!
Join us for a day of fun and camaraderie as tens of thousands of people across the country take Great Strides! Click here to see where there are walk sites in our area.
View pictures from many of our past events, including the Breath of the Hamptons, Breath of Life Gala, the Syosset Telegift event, the Great Strides Awards Ceremony, the Hunt, and more!
New CF Drug Shown Promising - CBS News "(CBS) An experimental drug is showing great promise against cystic fibrosis, raising hopes that it offers effective treatment to some people who have the life threatening illness..." Click here to read entire article!
Forty-seven teens from across the country, including six from the Greater New York Chapter, joined their peers in Washington, DC for the CF Foundation’s third annual Teen Advocacy Day on June 23rd. They spent the day advocating to their elected officials on behalf of their friends and relatives with cystic fibrosis. In photo - Sean Sondermann, Jonathan Ross and Samantha Clark with Representative Peter King. To read more, click here!
