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Executive Director:
Ms. Martine Denis
Greater New York Chapter
Long Island Office
425 Broad Hollow Road
Suite 318
Melville, NY, 11747
T: (516) 827-1290
F: (516) 827-1295
E: long-island@cff.org
Get Connected

 Watch National Advocacy Co-chairs, Amy & Peter Barry, and learn how easy it is to be an advocate for CF. 
 Watch National Advocacy Co- 
 chairs, Amy & Peter Barry, and
 learn how easy it is to be an
 advocate for CF.
 

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Greater New York Chapter
Long Island Office
 

Camryn
Camryn of Southold, NY

Hope in Motion

This is an exciting time at the Cystic Fibrosis Foundation! Due to the recent advances in research, including the breakthrough of the drugs VX-770 and VX-809, hope has been truly set in motion.  The Long Island CF Office staff proudly partners with volunteers to achieve our mission - controlling and ultimately curing cystic fibrosis.  Click here for more information on VX-770 and VX-809.

The cure is on the horizon, but we still need your help!

  • Form a Great Strides team and walk with us!
  • Volunteer in our office or at one of our events
  • Recruit companies and individuals to join us in the fight
  • Join an event committee; some events include our annual golf outings, galas, walks, and young professionals events.
  • Apply for one of our boards, including the Greater New York Board of Directors, our newly forming LI Advisory and Young Professionals Committees or our high school Student Youth Board

Join us!  Together, we can continue adding tomorrows every day to the lives of people with CF.

                                  Greater New York Board of Directors

                                                 Long Island Student Youth Board

      2012 Calendar
  Join Our Email List
 Email:   

To donate to a team or walkerclick here. To become an official Great Strides sponsor or to volunteer, please contact the Long Island Office at 516-827-1290 or long-island@cff.org.




Chapter Events

Great Strides

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Register Today and Take Great Strides!

Join us for a day of fun and camaraderie as tens of thousands of people across the country take Great Strides! Click here to see where there are walk sites in our area.











Events  - (1 to 1 of 1 matches)
November 2011
  11/01/11 -
  12/31/12
 
End of Events 
 
In the Spotlight
NYNS - Volunteer Events Logo
Find a CFF Volunteer Event Near You!
View a local listing of CF Fundraisers organized by volunteers and get involved today. Read more >>
Long Island - CFF Event Photos
Find Yourself in a Picture!
View pictures from many of our past events, including the Breath of the Hamptons, Breath of Life Gala, the Syosset Telegift event, the Great Strides Awards Ceremony, the Hunt, and more!
CFF
New CF Drug Shown Promising - CBS News
"(CBS) An experimental drug is showing great promise against cystic fibrosis, raising hopes that it offers effective treatment to some people who have the life threatening illness..." Click here to read entire article!
Teen Advocacy Day
Teens March on Capitol Hill to Speak Out for Cystic Fibrosis
Forty-seven teens from across the country, including six from the Greater New York Chapter,  joined their peers in Washington, DC for the CF Foundation’s third annual Teen Advocacy Day on June 23rd. They spent the day advocating to their elected officials on behalf of their friends and relatives with cystic fibrosis. In photo -  Sean Sondermann, Jonathan Ross and Samantha Clark with Representative Peter King. To read more, click here!
News and Events
01/09/2012   Vertex Plans Additional Studies of Kalydeco (VX-770) in More CF Patient Groups
12/28/2011   Taste of Utah Volunteers Raise Funds for the Fight Against CF
12/22/2011   CF Advocates Advance Research and Preserve Access to Care in 2011
12/20/2011   Potential CF Therapy Kalydeco (VX-770) Available to People with Critical Medical Need
12/19/2011   A Special Holiday Message from the CF Community
Make a donation to the Cystic Fibrosis Foundation
Sign up to get the latest news and information.
It's time to take Great Strides! Sign up today!
Learn more about the CF Services Pharmacy at www.cfservicespharmacy.com
Help discover and develop potential new treatments for CF by enrolling in a clinical trial.
Become a Volunteer and help add tomorrows every day for people with cystic fibrosis.
The Cystic Fibrosis Foundation is an accredited charity of the Better Business Bureau.