Cystic Fibrosis Foundation - Click here for homepage
Stay Informed  |  Volunteer  |  Clinical Trials

In This Section

Contact Us

Executive Director:
Ms. Martine Denis
Greater New York Chapter
Long Island Office
One Huntington Quadrangle
Suite 2S13
Melville, NY, 11747
T: (516) 827-1290
F: (516) 827-1295

Get Assistance

Get Assistance - Cox Boys
We are here to help people with CF get the insurance coverage they need. Hear how the Foundation helped the Cox family.

Join us on Facebook!  Facebook 
Follow us on Twitter!   Twitter
Follow us on Instagram!  Instagram 
Add us to your circle in Google+!


Subscribe to our channel on YouTube!  YouTube  



Greater New York Chapter
Long Island Office



Welcome to the Cystic Fibrosis Foundation, Greater New York Chapter – Long Island. The Cystic Fibrosis Foundation (CFF) is the world’s leader in the search for a cure for cystic fibrosis (CF). We fund more CF research than any other organization, and nearly every CF drug available today was made possible because of Foundation support.
Our mission is to cure cystic fibrosis and to provide all people with the diesase the opportunity to lead full, productive lives by funding research and drug development, promoting individualized treatment, and ensuring access to high-quality, specialized care. 
To achieve our goals, we partner with supporters who share our common vision of a world without cystic fibrosis. Together, we raise awareness and funds by holding fundraising events in Nassau and Suffolk Counties. We hope that you will share in our cause by joining an event committee; recruiting companies, families and friends to start Great Strides walk teams; signing up to bike in our Cycle for Life event; volunteering time at our office; helping organize a gala, or joining our Young Professional Leadership Committee. Your involvement will help us reach our goals. Please take a moment to visit our events calendar below.

Read about the CF Foundation in Discover Magazine here.
Click Here to view the video from our 2013 Scientific Update.

Click here to read Brianna's story 

Greater NY 2015 Board


Event Photos

Volunteer Events


Speak Out. Get Involved. Inspire Action.
Advocacy is just one more way you can make a difference for people with CF.

"Advocacy is so important to us as members of Congress because we want to hear from you...We want to know what it's like day to day, (the) lifestyle and problems you face because that is the kind of things that is going to motivate members of Congress to be involved too."
-Congressman Tim Murphy (R-PA)

Read about our recent advocacy initiatives:
Volunteer Advocates "March on the Hill" to Educate, Gain Support for Members of Congress

Greater NY Chapter Teens Walk the Hills of Congress 

March on the Hill:

Teen Advocacy Day:

Greater NY Chapter State Advocacy Chair, Melissa Shiffman, Congresswoman Nydia Velazquez, 7th District, and Trina Ward Fontaine, Greater NY Chapter staff member, during March on the Hill, the Cystic Fibrosis Foundation’s signature annual advocacy event. 

Advocating for Cystic Fibrosis can help:

  • Advance Cystic Fibrosis research and drug development
  • Promote access to care
  • Raise awareness of Cystic Fibrosis

For more information on advocacy,
 click here.

Questions? Please contact Trina Fontaine at 

Interested in becoming more involved with your local chapter? Whether you're sitting on an event committee, volunteering at an event, or working at our local office, the Greater New York Chapter could always use your help! If you are interest in becoming more involved, please contact Jaclyn Dagnall at 516 827-1290

Visit the other Greater New York offices' websites:
Manhattan and Westchester 

Follow us on
Facebook and Twitter!

Chapter Events

Great Strides


Register Today and Take Great Strides!

Join us for a day of fun and camaraderie as tens of thousands of people across the country take Great Strides! Click here to see where there are walk sites in our area.

Events  - (1 to 1 of 1 matches)
October 2015
End of Events 

In the Spotlight

Cyster act
Heroic 'Cyster' Act
Heroic 'cyster' act for six friends who received double lung transplants and are triumphing over lifelong battle with cystic fibrosis. Read more! 
Christmas Carol
Visit the John Engeman Theater in Northport and support CFF!
Receive $5 off the regular ticket price for any performance during the 2012-2013 season and the Foundation will receive $10 per ticket. Click here to view shows and dates. Visit their website to order your tickets. Use code "CFF" to receive your discount at time of purchase. 
Greater NY Chapter Teens Walk the Hills of Congress
Click here to view the Teen Advocacy Day article.
Beth GS
Beth Israel’s Cystic Fibrosis Care Center Wins Competition!!
The staff of Beth Israel’s CF Care Center rallied behind team leader Lashanda Dandrich in response to a Great Strides Care Center Challenge issued by the GNY Chapter. Click here to read more!

News and Events

06/25/2015   Affordable Care Act Supreme Court Decision Impacts People with CF
06/19/2015   NASCAR #18 to Sport CF Foundation Logo
06/15/2015   Walgreens Stores Nationwide Raise Funds and Awareness for CF Cause
06/12/2015   The Brightest Minds in Science, Medicine and Industry Meet to Discuss Advances and Challenges in CF Research
05/27/2015   CFF Announces New National Advocacy Chairs
Make a donation to the Cystic Fibrosis Foundation
Donate Now to the  Annual Fund
It's time to take Great Strides! Sign up today!
Become a Volunteer and help add tomorrows every day for people with cystic fibrosis.

The Cystic Fibrosis Foundation is an accredited charity of the Better Business Bureau.