In the 1970s, a small group of parents from the Capital Region, came together to do what they could about a little known disease called cystic fibrosis. These parents were determined to provide better care and an understanding of this disease that attacked their children’s lungs with a thick sticky mucous that made breathing very difficult. There were no known drugs, therapies or surgeries that could help their children breathe easier. At the time, the life expectancy of a child with CF was only 5 years old, most children with CF didn’t live long enough to attend kindergarten.
These determined parents organized the Northeastern New York Chapter of the Cystic Fibrosis Foundation.
Through more than 50 years of fund raising support from parents, families, friends, businesses, dedicated volunteers, the staff at the CF Care Center at Albany Medical Center and the staff of our chapter, we have been an intrical part in providing funds that have dramatically changed the course of this disease.
The funds our chapter has raised and continues to raise through family and community resources has provided ground breaking science, better therapies and drugs that have added tomorrows for those with CF.
Our work is not done. We will not rest until a cure is found for all individuals with cystic fibrosis. To that end, we thank our loyal supporters, volunteers, donors and families.
Karin Kennett - White
Corporate Advisory Board
2013 Young Professionals Board
Donna Clark- Executive Director
Cystic Fibrosis Foundation
16 Wade Road, Suite 2
Latham, NY 12110