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Executive Director, Donna Clark
Northeastern New York Chapter
16 Wade Road, Suite 2
Latham, NY, 12110
T: (518) 783-7361
F: (518) 783-7394
E: ne-ny@cff.org

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Northeastern New York Chapter

 In the 1970s, a small group of parents from the Capital Region, came together to do what they could about a little known disease called cystic fibrosis. These parents were determined to provide better care and an understanding of this disease that attacked their children’s lungs with a thick sticky mucous that made breathing very difficult. There were no known drugs, therapies or surgeries that could help their children breathe easier. At the time, the life expectancy of a child with CF was only 5 years old, most children with CF didn’t live long enough to attend kindergarten.

These determined parents organized the Northeastern New York Chapter of the Cystic Fibrosis Foundation.

Through more than 50 years of fund raising support from parents, families, friends, businesses, dedicated volunteers, the staff at the CF Care Center at Albany Medical Center and the staff of our chapter, we have been an intrical part in providing funds that have dramatically changed the course of this disease.

The funds our chapter has raised and continues to raise through family and community resources has provided ground breaking science, better therapies and drugs that have added tomorrows for those with CF.

Our work is not done. We will not rest until a cure is found for all individuals with cystic fibrosis. To that end, we thank our loyal supporters, volunteers, donors and families.

Foundation Board
Garrett Bissell
Terri Crowley
John Franklin
Joseph Gravini
Susan Hollister
Karin Kennett - White
CJ Kempf
Henry Kleindienst
Jim McGuinness
Lisa Reid
Thomas Siggia
Eric Simonds

Corporate Advisory Board
David Collins
Erin Conway
Tammy Crawford
Victoria Harkins
Stacey Hughes
Carney McGuire
Norine Molloy
Maureen Murphy
Jim Norton
Katie Powers

2013 Young Professionals Board
Phillip Chong
Amanda Devito
Sarah Franklin
Loran Stanfield
Rachael Wheeler
Nicole White

Contact Information
Donna Clark- Executive Director
Cystic Fibrosis Foundation
16 Wade Road, Suite 2
Latham, NY 12110
(P) 518-783-7361
(F) 518-783-7394
E-mail:
dclark@cff.org

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