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Executive Director, Chanda Fuller
Florida Chapter
Palm Beach Office
700 South Dixie Highway
Suite 100
West Palm Beach, FL, 33401
T: (561) 683-9965
F: (561) 683-7550
E: palm-beach-fl@cff.org

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Florida Chapter
Palm Beach Office

Pipeline to a Cure South

Event Overview

 Pipeline to a Cure

September 20, 2013
7:00 PM

Jupiter Beach Resort, 5 Florida A1A, Jupiter, FL 33477

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PURCHASE TICKETS 

Pipeline to a Cure South is a cocktail reception that will include both silent and live auctions as well as music, dancing, and a short program. A history of local surfing will be on display. The goal of Pipeline to a Cure is to increase funding and awareness to support vital CF research, care and ultimately find a cure for cystic fibrosis by rallying the surfing and action sports community .

A surf camp for cf families and friends will also be held on September 14th in Juno Beach.

For more information, contact Karen Gray or Megan Fogg at
kgray@cff.org or mfogg@cff.org

B. CEPACIA AND INFECTION CONTROL POLICY
Because of risks to people with cystic fibrosis (CF), only one person with CF may be invited. Also, individuals who have ever had a confirmed positive sputum culture for Burkholderia cepacia (B. cepacia) complex shall not attend any Foundation events/meetings. These requirements are because CF germs can be passed between individuals who have CF. Some germs in a person with CF can cause serious respiratory illness and, in some patients, may lead to death. CF germs are not a risk for otherwise healthy individuals.

Despite this policy, individuals with CF might choose to attend events or meetings without informing the CF Foundation or without the Foundation's knowledge. If so, they do so at their own risk. The Foundation accepts no responsibility for any risk to health involved in attendance, or in any social contact between persons with CF. For more information, please visit
 www.cff.org.

Important note on attendance for people with CF and their families:
The health and well-being of people with cystic fibrosis is our top priority. Medical evidence shows that certain bacteria can be passed between individuals who have CF and can lead to worse symptoms and speed decline in lung function. To limit the serious risk of cross-infection between people with CF, only one person with CF may be invited to attend the indoor portion of each CF Foundation-sponsored event.  For the outdoor portion of the event, people with CF should maintain a distance of at least 6 feet from each other.

Please note: People with CF and their families should be aware that individuals with CF might choose to attend Foundation events or meetings without notifying event organizers. We strongly discourage this; however, we cannot guarantee that only one person with CF will be present at any indoor Foundation event. For more information, please call your local chapter.


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 Travis and Piper
Chairman Travis Suit and his daughter, Piper