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Executive Director, Chanda Fuller
Florida Chapter
Palm Beach Office
700 South Dixie Highway
Suite 100
West Palm Beach, FL, 33401
T: (561) 683-9965
F: (561) 683-7550
E: palm-beach-fl@cff.org
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Florida Chapter
Palm Beach Office

Pipeline to a Cure

Event Overview

 Pipeline to a Cure

May 16, 2014

6:00 PM

Out of the Blue in Jonathan's Landing
3238 Casseekey Island Rd, Jupiter, FL 33477

Arrive by boat, paddleboard, or car and join us at this year's 2nd annual Pipeline to a Cure at Out of the Blue. Listen to live music by String Theory, enjoy delicious bites by Out of the Blue, and dance the night away while watching the sunset over the marina. Don't miss out on the awesome auction items and a great time with friends all while raising money to find a cure for CF. Don't forget to wear your best beach themed attire to help raise awareness about the positive effects saltwater activity on those living with cystic fibrosis.

Tickets are $100.00 for an individual. Sponsorship opportunities are available.

For more information, please contact Megan Fogg at
 mfogg@cff.org or call the CFF office at 561-683-9965.

Additional Information:
A surf camp for cf families and friends will be held in Juno Beach - please call for more information.

Pipeline to a Cure Surf Camp



B.CEPACIA AND INFECTION CONTROL POLICY
Because of risks to people with cystic fibrosis (CF), only one person with CF may be invited to participate in the indoor portion of the event. During the outdoor portion, people with CF should keep at least 6 feet away from others with CF. Also, individuals who have ever had a confirmed positive sputum culture for Burkholderia cepacia (B. cepacia) complex shall not attend any Foundation events/meetings. These requirements are because CF germs can be passed between individuals who have CF. Some germs in a person with CF can cause serious respiratory illness and, in some patients, may lead to death. CF germs are not a risk for otherwise healthy individuals.

Despite this policy, individuals with CF might choose to attend events without informing the CF Foundation or without the Foundation's knowledge. If so, they do so at their own risk. The Foundation accepts no responsibility for any risk to health involved in attendance, or in any social contact between persons with CF. For more information, please visit
 www.cff.org.

Important note on attendance for people with CF and their families:
The health and well-being of people with cystic fibrosis is our top priority. Medical evidence shows that certain bacteria can be passed between individuals who have CF and can lead to worse symptoms and speed decline in lung function. To limit the serious risk of cross-infection between people with CF, only one person with CF may be invited to attend the indoor portion of each CF Foundation-sponsored event.  For the outdoor portion of the event, people with CF should maintain a distance of at least 6 feet from each other.

Please note: People with CF and their families should be aware that individuals with CF might choose to attend Foundation events or meetings without notifying event organizers. We strongly discourage this; however, we cannot guarantee that only one person with CF will be present at any indoor Foundation event. For more information, please call your local chapter.


To participate:
Donate
Sponsorship Opportunities

 Committee:

Jim Brito, Co-Chair
Travis Suit Co-Chair
Melissa Askeland
Lee Heaton
Kyle Igneri
Kelli Jackson
Whitney Kukreja
Lauralee Longstaff
Kevin MacLean
Peter Marcus
Chris McDermott
Samantha Moore
Page Sanders
LeeAnn Suit