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Executive Director:
Ms. Susanne Perrone
Rochester Chapter
550 Latona Road, Building D
Suite 408
Rochester, NY, 14626
T: (585) 697-0777
F: (585) 697-0949
E: rochester-ny@cff.org
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 Watch NIH Director Dr. Francis Collins sing a song he wrote for the CF community at the 2009 North American CF Conference.
 Watch NIH Director Dr. Francis 
 Collins sing a song he wrote for
 the CF community at the 2009
 North American CF Conference.

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Rochester Chapter
 

All Year LongCommunityEvents 

Community Events are various fundraising events that are planned and conducted by anyone in the community that would like to donate the proceeds to the CF Foundation.

Please contact us to conduct an event of your own or to participate in area community events conducted to benefit the CF Foundation.   We have lots of ideas to help you help us!

Our community events include:

  • Fantasy Hockey Draft – April 10, 2007 at the Clarion Hotel 
  • Sam’s Club Motorcycle Fun Run  -- Big Flats, NY -- annually June
  • Sam’s Club Motorcycle Fun Run  -- Greece, NY – June 10th … $15 per bike and $5 per rider.  Bands, music, food and a great ride!
  • Run Like Hell –Johnny’s Irish Pub, Rochester, NY October 27, 2007 … a costumed 5k run around the city of Rochester near Johnny’s Irish Pub …
     
  • A Costume Dance – Nola’s Waterfront BBQ, Charlotte, NY   October 7, 2007.  A family fun night of dancing, costume contests and a great time!
  • A Wine Opener – November 2007, information coming soon….stay tuned…

 

For more information, contact: Fran Phillips, Special Events Coordinator - rochester-ny@cff.org or Karen McKissock, Executive Director, at kmckissock@cff.org or call (585)697-0777.

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The Cystic Fibrosis Foundation is an accredited charity of the Better Business Bureau.   The Cystic Fibrosis Foundation has a 4-star rating from Charity Navigator, America's largest independent evaluator of charities.