Funding for this trial has been provided in full or in part by Cystic Fibrosis Foundation Therapeutics, Inc.
Number of Participants Being Recruited:
Single / Multi-Center:
STUDY BACKGROUND INFORMATION:
With advances in CF care over the past 25 years, people with CF are living well into adulthood and transitioning from pediatric to adult care programs. Transitioning can be a difficult process for patients, families, and medical providers for a variety of medical, professional, interpersonal, and institutional reasons. Few experimental studies have looked at the transition experience or compared the quality of health care transition questionnaires designed to assess readiness to transition. This study will compare two health care transition questionnaries to aid in the development of CF - specific tools to help medical providers in determining when individual people with CF are ready to transition to adult care.
14 Years - 22 Years
P. aeruginosa status:
B. cepacia status:
Other Primary Eligibility Requirements:
Note: Detailed eligibility criteria information may be available on clinicaltrials.gov. If a specific
trial listing for this trial is available, a link to the specific clinicaltrials.gov listing will be present in the "More Information" section below.
The sites listed below are currently recruiting subjects. Please note that this list generally lists either the pediatric or adult program but not both even though both programs may be recruiting subjects. Also, this list does not include sites that may be participating in the study but are not yet open for recruitment. If you are interested in this study please contact your center for more information.
University of North Carolina at Chapel Hill (Pediatric), Chapel Hill, NC, 27599
Barlow, Carol Phone: (919) 966-9146 Email: firstname.lastname@example.org