Assessing Quality of Life in CF After Lung Transplant
Funding for this trial has been provided in full or in part by Cystic Fibrosis Foundation Therapeutics, Inc.
Number of Participants Being Recruited:
Single / Multi-Center:
STUDY BACKGROUND INFORMATION:
Researchers at CF care centers are using quality of life measurements to assist in determining the best time to refer for a lung transplant in CF children with end-stage lung disease. The way children with CF and their families perceive their quality of life is important when deciding when to refer children for a lung transplant.
The study will compare the quality of life perceptions in CF children who receive a lung transplant versus those children who are not lung transplant candidates. To determine this, researchers will be using a validated CF questionnaire that assesses the quality of life perception in children and their parents (or other caregivers).
>= 6 Years
- Percent Predicted
P. aeruginosa status:
B. cepacia status:
Other Primary Eligibility Requirements:
Note: Detailed eligibility criteria information may be available on clinicaltrials.gov. If a specific
trial listing for this trial is available, a link to the specific clinicaltrials.gov listing will be present in the "More Information" section below.
The sites listed below are currently recruiting subjects. Please note that this list generally lists either the pediatric or adult program but not both even though both programs may be recruiting subjects. Also, this list does not include sites that may be participating in the study but are not yet open for recruitment. If you are interested in this study please contact your center for more information.
Children's Hospital of Los Angeles (Pediatric), Los Angeles, CA, 90027
Vajda, Natalie Phone: (323) 361-3255 Email: firstname.lastname@example.org
Stanford University Medical Center (Pediatric), Palo Alto, CA, 94304
Dunn, Colleen Phone: (650) 736-0388 Email: email@example.com