Great Strides 2007
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CF Mother's Letter Read on Senate Floor

Senator Patty Murray

Taking precious time on a day off, nurse and CF mom, Sandi DeBord sat down at her computer to tell her senator, Patty Murray (D-WA), about her life and struggles with health care. “My 9-year-old daughter Sydney has cystic fibrosis,” she wrote. “She has spent many weeks in the hospital…and takes buckets of medications each day. But she is active, does well in school and loves to sing and dance. However, none of this would be possible if it weren’t for the quality health care she receives as part of SCHIP [State Children’s Health Insurance Program].”

Two days later, the letter from Yakima, Wash., made its way to the floor of the U.S. Senate in Washington, D.C. Reading from DeBord’s letter, Senator Murray illustrated the importance of SCHIP, a public assistance program that provides health coverage for millions of children in working American families, including many with CF.

Moved by her letter and informed by testimony from other legislators, two SCHIP bills passed Congress in early August. “Knowing that my letter helped make an impact passing legislation that is important to me is an amazing feeling,” said DeBord. “I can’t believe how easy it was to make my voice heard.”

To learn the latest on the SCHIP debate, visit