Karen Connell, Supervisor of Prevention Initiatives, Colorado Department of Education.
For me, clinical trials are a chance to find a new drug or treatment that could help me feel better. Also, sometimes they pay participants, and a little extra cash always helps. I believe that all people with CF should participate in trials if they are able. If people with the disease do not help with the research efforts, then new drugs cannot be tested.
With all of the safeguards that have been put into place to monitor how participants do with the study drug or treatment, the risk associated with participation is very small. I have participated in several clinical trials, and all of them have included constant and intense monitoring, which makes me feel safe. Knowing that I am safe and that my participation is making an actual difference makes it a simple decision to continue participating in clinical trials. I feel that participating is vitally important because clinical trials represent the only avenue to new treatments and eventually a cure for this disease.
We Need You
An estimated 10 percent of people with CF are currently involved in clinical trials, but that number must double by 2009 if new drugs are to be evaluated and become available to patients. We need your help to make sure progress continues.
I feel that participating is vitally important because clinical trials represent the only avenue to new treatments and eventually a cure for this disease."
Supervisor of Prevention Initiatives
Colorado Department of Education
Several resources are available to help you or your child learn about clinical trials being conducted in your area. Your CF center physician, nurse or research coordinator can provide information about research being conducted within the center or at other research centers nearby.
In addition, up-to-date information can also be found at www.cff.org/research/ClinicalResearch/Find/ or by calling the clinical trials hotline at (877) 8CF-JOIN.