Great Strides 2008
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CF Advocates Make House Calls


“I was not sure what to expect in our meeting with Representative Tim Murphy (R-PA), but as soon as we sat down in the office and began to tell our CF stories, I felt at home,” recalled Maryann Martin, whose daughter has cystic fibrosis. “Congressman Murphy really listened.”

This past summer, the CF Foundation launched “House Calls,” the Foundation’s first ever national campaign in which members of the CF community met with their elected officials in the U.S. House of Representatives. CF Foundation supporters around the country, including CF moms Angela Kinney and Maryann Martin of Pennsylvania, visited their members in the House to share their CF stories and to ask them to support the Foundation’s policy agenda.

You Can Reach Out . . .

and help spread awareness about cystic fibrosis by visiting your member of Congress at his/her local office. A step-by-step guide is available on the Foundation’s Web site at http://www.cff.org/GetInvolved/Advocate/.

Like Maryann, Angela had never met with any of her elected officials, but discovered her own strength in an unlikely place. “We never would have done this in a million years,” she told Maryann, “but our children need our help. Plus every day, they show us how brave they are; now we thought, ‘it’s our turn to be brave for them.’”

After talking with Maryann and Angela, Congressman Murphy promised to join the Congressional Cystic Fibrosis Caucus and said that he looked forward to tackling some of the unique challenges people with CF face, like affordable health care and funding for CF research.

“I was ecstatic after the meeting,” said Maryann, “and even convinced my parents to visit their member of the House. Being a CF Advocate is simple, and the Foundation gives you the tools you need, so you can tell your members of Congress what they can do to fight CF.”

Foundation volunteers advocate year round for promising CF research, affordable health care, and increased public awareness for the unique challenges that face people with the disease.

Learn how you can inspire your elected officials to be a voice for CF by visiting http://www.cff.org/GetInvolved/Advocate/.