There are more promising therapies in development than ever before that could potentially treat the basic defect in CF. Bringing these new drugs to people with CF requires participation in clinical trials. We need your help — join in the development of new treatments by volunteering for clinical trials.
Several resources are available to help you learn more about clinical trials being conducted in your area. Up-to-date information can be found by clicking here to visit cff.org or by calling the clinical trials hotline at (877) 8CF-JOIN.
With nearly 30 potential CF therapies in the drug discovery and development pipeline, the demand for CF lung cells is growing faster than the ability of researchers to obtain them.
To continue advancing essential drug discovery efforts, the CF Foundation urges lung transplant candidates to consider donating their CF lungs to the National Disease Research Interchange. Transplant patients should speak with their transplant physician and/or coordinator if they are interested in participating in this vital program. To prepare for lung cell donations, transplant teams should also contact Rose Fantasia at NDRI (RFantasia@ndriresource.org).
The CF Foundation and the CF Services Pharmacy have worked closely with the Houston law firm of Sufian and Passamano to establish the CF Legal Information Hotline. Headed by Beth Sufian, J.D., an attorney and adult with CF, the hotline helps callers address concerns and specific questions about the laws that pertain to the rights of CF patients. To contact the hotline, call (800) 622-0385 or e-mail CFLegal@cfserv.com.
Stay tuned. Our next issue of Commitment will have an in-depth overview of this year's GREAT STRIDES effort and highlights featuring top teams.
Since the launch of the new Advocacy section on the Foundation's Web site, thousands of supporters have visited the site to learn how they can make a difference and utilize enhanced resources.
Using letter templates, tips for contacting their representatives and other online advocacy resources, volunteers have already made a big difference in increasing awareness and promoting support for CF research on Capitol Hill.
You can too! Visit cff.org/GetInvolved/Advocate to take advantage of the Advocacy Toolkit, and get started today!