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President's Letter Addresses CF Care Issues


To help more people understand the unique healthcare challenges facing people with cystic fibrosis, CF Foundation President and CEO Robert J. Beall, Ph.D. wrote a letter to the editor of the Washington Post this past November.

Responding to the debate over access to health care in Washington, D.C., the letter reflected the Foundation's efforts to ensure that people with CF have a voice in this critical discussion. Beall noted that health insurance premiums and out-of-pocket health costs have risen 20 percent in the last year for those with CF.  At least 21 percent of patients report missing doses of their medications or taking less than the prescribed amount. Additionally, at least 13 percent said that due to cost, they delay seeking medical care or forego it altogether.

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The challenges faced by underinsured cystic fibrosis patients mirrors the challenges faced by the underinsured population as a whole. This is a key part of the debate and too important to ignore."


Robert J. Beall, Ph.D.
President and CEO
Cystic Fibrosis Foundation

"The challenges faced by underinsured cystic fibrosis patients mirrors the challenges faced by the underinsured population as a whole," wrote Beall.  "This is a key part of the debate and too important to ignore." As policy debates about the U.S. health care system continue, the Foundation is dedicated to helping people with CF gain access to essential treatment and care.  Click here to read the entire letter to the editor.