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Advocacy Achievements
> News and Events
News and Events
12/29/09
Cystic Fibrosis Foundation 2009 Successes: Advocating For and With Patients on Many Fronts
10/26/09
Teens Visit Capitol Hill to Urge Support for their Siblings with CF
09/28/09
Foundation Leads Coalition of More than 100 Organizations in Support for Clinical Trials Bill
09/16/09
U.S. Senate Introduces Bill to Increase Participation in Clinical Trials for Rare Diseases
09/16/09
Voices of CF Community Help CF Services Pharmacy Continue Operations in NY
09/15/09
CF Advocates Make Every Breath Count
08/18/09
NIH Director Francis Collins Steps into New Role
08/13/09
Cystic Fibrosis Foundation's Statement on Health Care Reform
07/09/09
CF Foundation Supports President Obama’s Nomination of Francis Collins, M.D., Ph.D., as New NIH Director
07/07/09
All 50 States to Screen Newborns for Cystic Fibrosis by 2010
06/18/09
CF Foundation Testifies Before Congress on Improving Rare Disease Research
06/15/09
Obama Cites Cincinnati CF Center as an Example of “Outstanding” Care
06/15/09
New Legislation Seeks to Boost Participation in Clinical Trials for Rare Diseases
05/28/09
Senator Shelby and Acting NIH Director Raynard Kington Praise CF Foundation at Hill Hearing and Call for Ongoing Funding
05/11/09
Texas Legislature to Fund CF Newborn Screening – All 50 States Soon to be Screening for CF
05/04/09
Connecticut Legislature Unanimously Approves CF Newborn Screening Bill
04/15/09
North Carolina Begins Screening Newborns for CF
04/13/09
As Health Care Reform Takes Center Stage, Foundation Asks Washington to Consider CF Patients
01/28/09
Senator Highlights CF During Children's Health Insurance Debate
01/16/09
U.S. House Passes Measure to Ensure Health Care for Millions of Children
01/08/09
Utah Begins CF Newborn Screening
11/18/08
Patients and Families Asked to Share Their Experiences About AZLI
10/14/08
New Law Ensures Health Coverage for College Students with CF
09/19/08
New Information Available About Health Coverage & Income Assistance
09/02/08
Summer Advocacy Campaign Connects CF Community with Congress
08/26/08
North Carolina and Nevada Step up Efforts to Screen Newborns for Cystic Fibrosis
07/15/08
House Passes Resolution to Recognize Cystic Fibrosis
07/11/08
Five States Step Up Efforts to Screen Newborns for Cystic Fibrosis
05/13/08
Alabama Begins Screening Newborns for CF
05/01/08
Genetic Non-Discrimination Act and Newborn Screening Laws Pass Congress
04/29/08
Senate Declares May National CF Awareness Month
04/24/08
CF Foundation Lauds Congress for Passage of Small Business Innovation Research Program
04/10/08
Three New States Join Efforts to Screen Newborns for CF
04/10/08
CF Champions Ask Congress to Designate May National Cystic Fibrosis Awareness Month
01/29/08
Foundation President and CEO Testified Before Congress on Drug Research
01/17/08
Montana Passes Newborn Screening Law for Cystic Fibrosis
01/14/08
Access to CF Care Issues Addressed in
LA Times
Article
11/05/07
W. Post
Publishes Letter on Health Care Access
11/01/07
Volunteers Needed to Help Recruit for Congressional CF Caucus
10/30/07
Champion of CF Research to Receive Presidential Medal of Freedom
10/03/07
New Advocacy Section Gives You the Tools to SPEAK OUT for CF
08/02/07
Foundation Supporters Ask Congress to Ensure Health Coverage for CF Kids
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