CF Advocates Make Every Breath Count

September 15, 2009

 
CF advocates meet with Congressman Westmoreland (R-GA) for the 2009 Summer Advocacy event Make Every Breath Count. Pictured L to R: Janet Helms, Samantha DePriest, Madeline Daly, Tim Radney, Congressman Westmoreland, Linda Doenges, Brandi Jones, Tricia Doenges, Barbara Bricker, Crystal Adams.

Last month, CF Advocates across the country took part in “Make Every Breath Count,” the CF Foundation’s second annual summer advocacy campaign.

The national campaign gives members of the CF community the opportunity to meet with their elected officials in the U.S. House of Representatives.

“When I saw that the CF Foundation was offering training sessions for folks who wanted to visit their members of Congress, I couldn’t pass it up,“ said Samantha DePreist, mother of Colin, 11 months, who has CF. “Before I knew it, I had five other families signed up for the training and prepared to visit Representative Westmorland [G-RA] along with me.” 

Samantha and other CF Foundation supporters nationwide visited their members in the House to share their CF stories and to build support for the Foundation’s public policy agenda.

“We returned home rejuvenated and hopeful," Samantha recalled, “knowing that we had taken one more step to ensure our kids live long and healthy lives — we had been part of something bigger than ourselves.”

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