CF Foundation Expresses Concern about Proposed Changes in Disability Benefits

April 5, 2013

On behalf of the CF community, the Cystic Fibrosis Foundation has expressed its concern to the Social Security Administration (SSA) about a proposed rule that could make it more difficult for people with CF to receive disability benefits.

Many people with cystic fibrosis receive disability benefits through the SSA’s Social Security Disability Insurance (SSDI) and Supplemental Security Income (SSI) programs.

The SSA recently released a proposed rule that would change the way it determines whether people with respiratory diseases, including CF, are eligible for disability benefits. The Foundation is concerned about the impact the proposed changes could have on people with CF who rely on these benefits.

To help make sure that the final rule is in the best interest of those with CF, the Foundation has sent comments to the SSA reflecting the CF community’s concerns. The Foundation has also mobilized CF care centers within its nationwide network and has forwarded a letter signed by more than 100 center directors to the SSA.

The Foundation will work with key members of Congress to make sure that the CF community’s concerns are addressed, and will continue to communicate with the SSA and advocate on behalf of people with CF to help them access the government benefits they need to stay healthy.

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