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News and Events

02/12/14   Congressional Briefing Showcases CF Foundation Drug Development and Care Center Models
12/06/13   Cystic Fibrosis Foundation Awards Senator Michael Bennet the Breath of Life Legislator Award
11/12/13   The Affordable Care Act and Cystic Fibrosis: What You Need to Know
08/02/13   CF Advocate Provides Remarks about Kalydeco, FDA Review at Congressional Briefing
07/26/13   Rep. Jim McGovern is New Co-Chair of Congressional Cystic Fibrosis Caucus
07/01/13   Teens Meet with Members of Congress to Raise Awareness About Cystic Fibrosis
05/30/13   Members of Congress Express Concern about Proposed Changes to Social Security Disability Benefits
05/06/13   SSA to Host Call for CF Community About Proposed Changes to Disability Benefits
04/05/13   CF Foundation Expresses Concern about Proposed Changes in Disability Benefits
10/17/12   CF Research Successes Highlighted at Capitol Hill Event
07/05/12   50 Teens Visit Capitol Hill to Speak Out for Loved Ones with CF
06/28/12   Supreme Court Upholds Health Reform Act – Retaining Key Provisions that Benefit CF Community
06/27/12   U.S. Senate Passes EXPERRT Act — Bill Increases Patient and Expert Participation in FDA Review of CF and Other Rare Disease Drugs
06/21/12   CF Foundation Applauds Passage of the EXPERRT Act in House of Representatives
05/24/12   EXPERRT Act Benefiting Cystic Fibrosis and Other Rare Diseases Included in FDA Legislation
03/14/12   CF Foundation Advocates “March on the Hill” to Attract Support from Members of Congress
01/31/12   FDA Approves Kalydeco (VX-770) — First Drug That Targets the Underlying Cause of Cystic Fibrosis
12/22/11   CF Advocates Advance Research and Preserve Access to Care in 2011
11/09/11   New Online Library Helps CF Patients Navigate the Challenges of Health Care Coverage
10/14/11   Foundation Launches New Policy Bulletin
10/10/11   Influential Congressional Committee Recognizes the Importance of Cystic Fibrosis Research
07/29/11   CF Foundation Kicks Off Make Every Breath Count Campaign
06/24/11   Teens Travel to Washington, D.C., to Speak Out for Cystic Fibrosis
06/14/11   CF Foundation Drug Development Model Showcased at Congressional Briefing
04/04/11   “Improving Access to Clinical Trials Act” Takes Effect
03/23/11   Volunteers “March on the Hill” During the CF Foundation’s Annual Advocacy Effort
12/21/10   CF Advocates Make Their Voices Heard in 2010
10/08/10   President Obama Signs “Improving Access to Clinical Trials Act” Into Law, Finalizing a Major Achievement for CF Advocates
09/23/10   “Improving Access to Clinical Trials Act” Passes U.S. House, Heads to President for Signature
08/20/10   Michigan Teens Give U.S. Senator a Glimpse of Life with CF
08/06/10   “Improving Access to Clinical Trials Act” Passes U.S. Senate in Victory for CF Advocates
06/30/10   Teens Make Their Voices Heard on Capitol Hill, Urging Support for Siblings with CF
05/24/10   CF Foundation Drug Development Model is “Proof of Principle” for Other Diseases, says NIH Director in U.S. Senate Briefing
04/01/10   New Health Coverage Regulations Beneficial to People with CF to Take Effect In September 2010
03/22/10   New Health Reform Bill Includes Provisions that Impact People with CF
12/29/09   Cystic Fibrosis Foundation 2009 Successes: Advocating For and With Patients on Many Fronts
10/26/09   Teens Visit Capitol Hill to Urge Support for their Siblings with CF
09/28/09   Foundation Leads Coalition of More than 100 Organizations in Support for Clinical Trials Bill
09/16/09   U.S. Senate Introduces Bill to Increase Participation in Clinical Trials for Rare Diseases
09/16/09   Voices of CF Community Help CF Services Pharmacy Continue Operations in NY
09/15/09   CF Advocates Make Every Breath Count
08/18/09   NIH Director Francis Collins Steps into New Role
08/13/09   Cystic Fibrosis Foundation's Statement on Health Care Reform
07/09/09   CF Foundation Supports President Obama’s Nomination of Francis Collins, M.D., Ph.D., as New NIH Director
07/07/09   All 50 States to Screen Newborns for Cystic Fibrosis by 2010
06/18/09   CF Foundation Testifies Before Congress on Improving Rare Disease Research
06/15/09   Obama Cites Cincinnati CF Center as an Example of “Outstanding” Care
06/15/09   New Legislation Seeks to Boost Participation in Clinical Trials for Rare Diseases
05/28/09   Senator Shelby and Acting NIH Director Raynard Kington Praise CF Foundation at Hill Hearing and Call for Ongoing Funding
05/11/09   Texas Legislature to Fund CF Newborn Screening – All 50 States Soon to be Screening for CF
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