News and Events

 
10/26/09   Teens Visit Capitol Hill to Urge Support for their Siblings with CF
09/28/09   Foundation Leads Coalition of More than 100 Organizations in Support for Clinical Trials Bill
09/16/09   U.S. Senate Introduces Bill to Increase Participation in Clinical Trials for Rare Diseases
09/16/09   Voices of CF Community Help CF Services Pharmacy Continue Operations in NY
09/15/09   CF Advocates Make Every Breath Count
08/18/09   NIH Director Francis Collins Steps into New Role
08/13/09   Cystic Fibrosis Foundation's Statement on Health Care Reform
07/09/09   CF Foundation Supports President Obama’s Nomination of Francis Collins, M.D., Ph.D., as New NIH Director
07/07/09   All 50 States to Screen Newborns for Cystic Fibrosis by 2010
06/18/09   CF Foundation Testifies Before Congress on Improving Rare Disease Research
06/15/09   Obama Cites Cincinnati CF Center as an Example of “Outstanding” Care
06/15/09   New Legislation Seeks to Boost Participation in Clinical Trials for Rare Diseases
05/28/09   Senator Shelby and Acting NIH Director Raynard Kington Praise CF Foundation at Hill Hearing and Call for Ongoing Funding
05/11/09   Texas Legislature to Fund CF Newborn Screening – All 50 States Soon to be Screening for CF
05/04/09   Connecticut Legislature Unanimously Approves CF Newborn Screening Bill
04/15/09   North Carolina Begins Screening Newborns for CF
04/13/09   As Health Care Reform Takes Center Stage, Foundation Asks Washington to Consider CF Patients
01/28/09   Senator Highlights CF During Children's Health Insurance Debate
01/16/09   U.S. House Passes Measure to Ensure Health Care for Millions of Children
01/08/09   Utah Begins CF Newborn Screening
11/18/08   Patients and Families Asked to Share Their Experiences About AZLI
10/14/08   New Law Ensures Health Coverage for College Students with CF
09/19/08   New Information Available About Health Coverage & Income Assistance
09/02/08   Summer Advocacy Campaign Connects CF Community with Congress
08/26/08   North Carolina and Nevada Step up Efforts to Screen Newborns for Cystic Fibrosis
07/15/08   House Passes Resolution to Recognize Cystic Fibrosis
07/11/08   Five States Step Up Efforts to Screen Newborns for Cystic Fibrosis
05/13/08   Alabama Begins Screening Newborns for CF
05/01/08   Genetic Non-Discrimination Act and Newborn Screening Laws Pass Congress
04/29/08   Senate Declares May National CF Awareness Month
04/24/08   CF Foundation Lauds Congress for Passage of Small Business Innovation Research Program
04/10/08   Three New States Join Efforts to Screen Newborns for CF
04/10/08   CF Champions Ask Congress to Designate May National Cystic Fibrosis Awareness Month
01/29/08   Foundation President and CEO Testified Before Congress on Drug Research
01/17/08   Montana Passes Newborn Screening Law for Cystic Fibrosis
01/14/08   Access to CF Care Issues Addressed in LA Times Article
11/05/07   W. Post Publishes Letter on Health Care Access
11/01/07   Volunteers Needed to Help Recruit for Congressional CF Caucus
10/30/07   Champion of CF Research to Receive Presidential Medal of Freedom
10/03/07   New Advocacy Section Gives You the Tools to SPEAK OUT for CF
08/02/07   Foundation Supporters Ask Congress to Ensure Health Coverage for CF Kids