Advocacy Toolkit - Resource Center

Here, find the tools and information you can use to speak out for cystic fibrosis (CF).

“In a 2-hour speech, people will remember a 2-minute story”
- Mary Dwight, Vice President, Government Affairs

Remember: Your personal story about CF is what will inspire your elected officials to take action, so make sure it’s incorporated in all of your communications.

How To:

• Call Your Member of Congress
  
  
• Write Your Member of Congress
  
  
• Visit Your Member of Congress: A Step-by-Step Guide
  
  
• Sample Thank You Letter to Your Member of Congress
  
  
• Tips to Help Tell Your Story
  
  
• You Can Do This! FAQs about being an Advocate
  
  
• Public Policy 101 - Learn how a bill becomes a law, how many people in Congress represent you, and other useful information about state government, elections, political parties and more.

Fact Sheets:

• CF Fact Sheet — Use this double-sided one page fact sheet when you speak out for cystic fibrosis. The fact sheet includes information about CF, the CF Foundation, and the Foundation's Policy Agenda (What your members of Congress can do to support CF).
  
  
• Clinical Trials/SSI Bill Fact Sheet — Share this fact sheet with your Member of Congress to explain the importance of eliminating barriers to clinical trial participation.
  
  
• Access to Care and Drugs Fact Sheet — This double-sided document is an overview of the challenges that face people with CF in accessing the vital care and drugs they need. Use it to offer your policy makers solutions as to how they can help patients and their families overcome these challenges.
  
  
• CF Foundation Health Care Reform Statement - Provisions the Foundation supports to improve access to quality care for people with CF.
  
  
• Request to NIH for Funding — Share this document, which demonstrates the important collaboration between the Foundation and the National Institutes of Health to advance research, with members of Congress and other potential supporters.