You Can Do This! 

Advocacy FAQs 

Congressional CF Caucus Co-Chair Rep. Cliff Stearns (R-FL) meets with teen CF Advocates on the steps of the U.S. Capitol.

Congressional CF Caucus Co-Chair Rep. Cliff Stearns (R-FL) meets with teen CF Advocates on the steps of the U.S. Capitol during the CF Foundation’s second annual Teen Advocacy Day.

It’s easy to advocate on behalf of those with CF! You can make an impact just by telling your story. Below, find answers to the questions and concerns we hear most from advocates like you.


I can’t commit the time needed to be an advocate.

Advocacy can be as simple as sending a prewritten letter to your elected officials. With the tools you find here, it will take you no more than a minute to speak out for cystic fibrosis.

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What can I say that my elected official does not already know?

Quite often, elected officials are in decision-making positions because they were passionate about an issue and wanted to change something — just like what you’re doing!

Remember, you are an expert on cystic fibrosis. This is an opportunity to share your knowledge about an issue important to you.

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What if they ask questions that I can’t answer?

It’s okay if you’re not sure how to answer a question. Tell them, “I’m not sure, but I’ll get back to you with an answer.” Be sure to let us know at publicpolicy@cff.org, we are happy to help. Then you can follow up with the person you met with by email or with a phone call. More than likely, you will know far more than they will in regard to cystic fibrosis.

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I’m just one person; can I really make a difference?

Not only are you an expert on cystic fibrosis, you are a constituent — which means your elected officials work for YOU! You can inspire your leaders to help fight cystic fibrosis.

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It's too difficult!

It’s normal to feel nervous when you first get started. But remember, we will be there to help you, every step of the way.

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I’ve contacted my elected official, but have not heard back.

Like all of us, elected officials have very busy schedules. They also receive hundreds of requests from their constituents each day. The key to making your voice heard is being persistent, but also demonstrating that you are flexible and understand the challenge that each office faces in fulfilling requests.

If you don’t hear from an elected official’s office within a week of contacting them, call and inquire about when you should expect a response. Keep trying once a week until they get back to you.

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Who can I contact if I have other questions?

Have additional questions? Ask the Foundation's Public Policy Department by sending an email to publicpolicy@cff.org.

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