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We are here to help people with CF get the insurance coverage they need. Hear how the Foundation helped the Cox family.

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Visit Your Member of Congress

A Step by Step Guide
The Parkinson family and Alta Davis, CF Advocates, 
share their story with Rep. Jason Chaffetz (R-UT).
The Parkinson family and Alta Davis, CF Advocates, share their story with Rep. Jason Chaffetz [R- UT].

Meeting with your legislator in his or her office lets you convey your message about cystic fibrosis face to face. Follow these steps to schedule an appointment and make the most of your meeting.

On this page:

Step 1: Schedule an Appointment
Step 2: Contact Us
Step 3: Print Your Materials
Step 4: Attend the Meeting
Step 5: Send a Thank You Letter 



Step 1: Schedule an Appointment 


Tips to schedule an appointment:
  • Call well in advance
  • Be prepared to be flexible
  • Be patient but persistent
  • Follow up
  • Say thank you

  • Plan to call the Member of Congress’ office well in advance of when you intend to meet with him/her.

  • Find your member of Congress. After you’ve looked up your member, click on their name to go to their website. Scroll to the bottom of their homepage and find the phone number for the office where you’d like to have your meeting.

  • Call your Member of Congress' office and ask to speak with the scheduler. To increase your chances of getting a meeting with your representative, try one of these lines:

“I’m a constituent, and I would really like to meet with the representative/senator to discuss how cystic fibrosis has affected my life. Is there a date that he/she is available for this meeting?”

“I would really like to meet with the representative/senator while he/she is back from Washington to talk about cystic fibrosis. What date would work best for his/her schedule when he/she is back home?”

  • Follow up! Clarify the best way for the office to contact you about your meeting request. Call the office again to check the status of your meeting request. Keep contacting the office once a week until you are offered a firm meeting time.

  • Some offices may require that you put your request in writing in order to schedule a meeting. Use this sample meeting request letter if you are asked to provide a written request.

Step 2: Contact Us

Tell us when you schedule your meeting!

We’ll provide you with all the tools, training, and resources you’ll need to make your meeting a success.

Click here to email the CF Foundation’s Public Policy Department.

Step 3: Print Your Materials

Click here to find and print all of the handouts you’ll need for your meeting.

Step 4: Attend the Meeting 

When you meet with your Member of Congress, your job is simple — to inspire. Tell your cystic fibrosis story — and remember, you’re the expert. Here are some tips to help you make the most of your meeting:

What to Share 

  • Your name and that you are working with the Cystic Fibrosis Foundation
  • Your connection to cystic fibrosis
  • The challenges of the disease, with the focus on solutions
  • Where you are from and that you are a constituent

How to Say It

  • Be prepared — plan what you want to say
  • Keep it brief
  • Show up early and prepare to be flexible
  • Dress professionally
  • Leave handouts

Better to Leave Out

  • Acronyms (like “CF”, instead use “cystic fibrosis”) or jargon
  • An overload on statistics or facts
  • A mention of who you voted for

And don’t forget to let us know how it went!

Click here to email the CF Foundation’s Public Policy Department.


Tips for your thank you letter:
  • Personalize the letter
  • Keep it brief
  • Use "cystic fibrosis," not "CF"
  • Retell your cystic fibrosis story


Step 5: Send a Thank You Letter
  
If your Member of Congress has taken the time to support cystic fibrosis, by meeting with you or sponsoring legislation important to people with CF, it is vital to say thank you.

Here’s a great sample thank you letter.

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