Signing of Congressional Cystic Fibrosis Caucus Mission, March 16, 2006, from L to R: Rep. Edward Markey; Cystic Fibrosis Foundation President and CEO, Robert J. Beall, Ph.D. and Vice President of Public Policy and Patient Affairs Suzanne Pattee; and Rep. Cliff Stearns. |
The Congressional Cystic Fibrosis Caucus aims to increase awareness about cystic fibrosis on Capitol Hill. The Caucus is led by Edward Markey (D-MA) and Cliff Stearns (R-FL).
With more than 100 Members of Congress, the Cystic Fibrosis Caucus provides the Cystic Fibrosis Foundation with a valuable tool to educate elected officials about the disease and spur action on issues beneficial to the cystic fibrosis community.
The Caucus Works to:
- Improve the quality of life for people with cystic fibrosis.
- Support cystic fibrosis research funding through the NIH and other federal research agencies;
- Encourage collaboration between the public sector and private research organizations, including the Cystic Fibrosis Foundation and biopharmaceutical industry;
- Advocate for earlier diagnosis through state-based newborn screening;
- And promote public policies that address the research and health care needs of the cystic fibrosis community, including access to quality health care.
View a list of the current members of the Congressional Cystic Fibrosis Caucus.
Need to know who your representatives are and if they are a part of the Caucus?
Click here to find out.
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