Cystic Fibrosis Foundation - Click here for homepage
Stay Informed  |  Volunteer  |  Clinical Trials

In This Section

Quick Links

Find a Chapter

Get Assistance

Get Assistance - Cox Boys
We are here to help people with CF get the insurance coverage they need. Hear how the Foundation helped the Cox family.

Join us on Facebook!  Facebook 
Follow us on Twitter!   Twitter
Follow us on Instagram!  Instagram 
Add us to your circle in Google+!

Google+ 

Subscribe to our channel on YouTube!  YouTube  


 

 

Print  

CF Foundation Meets with Private Insurers, Medicaid Officials and Other Health Experts to Help People with CF Access High Quality Care

February 23, 2015

At a meeting hosted by the Cystic Fibrosis Foundation, private insurers, state Medicaid officials, care center providers, health experts and people with CF and their families came together to discuss innovative ways to continue improving high quality CF care on February 4.

The goal of the meeting was to identify opportunities for the Foundation to work with the CF community to provide payers, including private insurers and Medicaid, with the tools and information necessary to make appropriate, informed coverage decisions in order to provide high-quality, specialty care to people with CF.

During the forum, the Foundation shared with payers its ongoing work to better utilize the CF Patient Registry, improve standardization of care, reduce the administrative burden on care center providers and people living with CF and improve patient health. Recent data suggests that providers spend 52 percent of their time on administrative tasks, such as communicating with insurance companies and Medicaid regarding prior authorization requests and denials or appeals for coverage.

Ilene Hollin, a Health Economics Ph.D. candidate at Johns Hopkins University and adult with CF, described her typical day. Between therapies, research and studies, time spent on the phone with insurance companies, care providers and pharmacies, she is left with just two hours void of responsibility.

“For a disease that already cuts your life short, I just want more time to enjoy myself,” Ilene said.

The CF Foundation will continue to collaborate with payers and providers to find ways to work together to create better patient outcomes and improve the quality of care.

Alaska Hawaii Alabama Arizona Arkansas California Colorado Connecticut Delaware District of Columbia Florida Georgia Idaho Illinois Indiana Iowa Kansas Kentucky Louisiana Maine Maryland Massachusetts Michigan Minnesota Mississippi Missouri Montana Nebraska Nevada New Hampshire New Jersey New Mexico New York North Carolina North Dakota Ohio Oklahoma Oregon Pennsylvania Rhode Island South Carolina South Dakota Tennessee Texas Utah Vermont Virginia Washington West Virginia Wisconsin Wyoming
Make a Donation - Click here to donate now.
Help discover and develop potential new treatments for CF by enrolling in a clinical trial. Click to learn more.

The Cystic Fibrosis Foundation is an accredited charity of the Better Business Bureau.