Cystic Fibrosis Foundation - Public Policy Agenda

Public Policy Agenda

Advocates Make CF Issues a Legislative Priority

You are the voice of cystic fibrosis (CF) and your voice is needed to tell your elected officials how they can help ensure that people with this disease have the support they need to live longer, healthier lives. We’ve come a long way in the last 50 years, but there is still much to do.

The Cystic Fibrosis Foundation and its Advocates support public policy to:

Advance research for CF
Improve access to care
Increase awareness for the disease

CF Advocate Will Corcoran met with Congressman Shays and asked him to support research for CF.

Advance Research

The government plays an important role in supporting crucial research to find a cure or control for CF. Speak Out for CF research and other CF priorities.

"I asked my Congressman (Chris Shays, D-CT) to support research for CF, so that one day, CF will mean 'Cure Found'."

–Will Corcoran, CF Advocate, with Congressman Shays

Improve Access

CF Advocate Beth Sufian contacts her elected officials to keep them informed about access to CF care.

The cost of CF care and drugs is a serious challenge for many with this disease. Sign up for the advocacy newsletter to stay informed about access to quality, affordable CF drugs and care, and other important CF policy issues.

"Every day, I hear from people with CF who struggle to get the care and drugs they need to lead healthy, productive lives. I contact my elected officials—the people who represent us—regularly, to keep them informed of this critical issue. If I don’t, who will?"

–Beth Sufian, CF Advocate & Founder, The CF Legal Information Hotline

Increase Awareness

Ensure your elected officials understand the unique challenges that face people with CF—Get Involved today.

CF Advocate Alton Jones met with Congressman Barrett to increase awareness about cystic fibrosis.

"I know I’m making a difference in my granddaughter Emalie’s life when I tell my representatives about her and what she needs to thrive."

–Alton Jones, CF Advocate with Congressman J. Gresham Barrett (R-SC)

See what CF Advocates have already achieved.