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Research Coordinator Liz Hartigan talks about the need for clinical trial volunteers to help advance CF treatments. Watch video now.
Research Coordinator Liz Hartigan talks about the need for clinical trial volunteers to help advance CF treatments.

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Living with Cystic Fibrosis

Adding Tomorrows Every Day

Adding tomorrows every day expresses the mission—and results—of the Cystic Fibrosis Foundation’s steadfast efforts to extend the length and quality of life for people with cystic fibrosis (CF). CF presents daily challenges for approximately 30,000 Americans. But life with the disease is far different today than it was 50, 30, or even 10 years ago. 

Perhaps the best evidence that many people with cystic fibrosis are living longer is the fact that more than 40 percent of the CF patient population is now age 18 or older. Recently developed therapies and specialized care have enabled people with CF to gain greater control over their disease. So, children and adults are not only living longer, but also living a better quality of life.

What Else Has Changed?  

  • More tools and information are now available to help patients, their families, and medical professionals to work together as a team. 
  • The Cystic Fibrosis Foundation supports and accredits 115 care centers nationwide where people with CF can receive expert care and access resources. Most care centers have a pediatric and adult program or clinic. Some centers also include affiliate programs. All programs, however, are staffed by dedicated healthcare professionals who specialize in the treatment of cystic fibrosis.
  • Patients can actively fight their disease by volunteering for clinical trials on new therapies.

Learn More About Living With Cystic Fibrosis

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The Cystic Fibrosis Foundation is an accredited charity of the Better Business Bureau.   The Cystic Fibrosis Foundation has a 4-star rating from Charity Navigator, America's largest independent evaluator of charities.