Patient Assistance Resources

Today’s healthcare landscape can be hard to navigate. A growing number of people with CF are finding themselves facing difficult choices about their or their child’s healthcare — even postponing care and cutting back on medications — due to financial concerns.

The CF Foundation is dedicated to helping all people with CF get the coverage they need to keep their CF treatment and health on track.

We have created a network of resources to help you make the most of your healthcare coverage, decide on coverage that's right for you or to find programs that can help you pay for treatment. 

Resources 

• CF Patient Assistance Foundation - As a non-profit subsidiary of the CF Foundation, the CFPAF helps people with CF afford the medications and devices they need to manage their disease. The CFPAF offers the only national patient-assistance program designed specifically for the CF community.
  
  
• CF Services Pharmacy - The only full-service pharmacy that is a wholly owned subsidiary of the CF Foundation and specializes in CF medications, patient advocacy and reimbursement support.
  
  
• CF Legal Information Hotline - Sponsored by the CF Foundation, the CF Legal Information Hotline provides free information about the laws that protect the rights of individuals with CF.
  
  
• Patient Assistance Resource Library - An online database that provides documents, template letters and other tools for people with CF, caregivers and insurers.
  
  
• The Mutation Analysis Program (MAP) - To help people with CF and families make informed decisions about treatment options, MAP provides free and confidential genetic testing to patients with a confirmed diagnosis of cystic fibrosis. The program is available to people who have not yet had genetic testing to determine their CF mutations or who have been tested previously but still have one or more unknown mutations. To learn more about MAP, talk with your CF doctor or care center. Providers or care centers may contact MAP directly at 1-888-315-4154, option 2, MAP@cff.org.
  
  
• Advocacy and Public Policy - The CF Foundation represents the CF community at all levels of government to ensure that people with the disease have access to the care and treatment they need to help them live longer and healthier lives.
  
  
  • Federal Programs
  • State Programs

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