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We are here to help people with CF get the insurance coverage they need. Hear how the Foundation helped the Cox family.

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School Transitions for People with CF and their Families

For children and families living with cystic fibrosis, the first day of day care or school not only marks the transition toward greater independence but also greater responsibility in managing their own CF care.

To guide you through these transitional school years, people with CF and their families share experiences and advice on what to expect and how they’ve adjusted when faced with the shifting challenges of growing up with CF.

The Pathways to Lifelong Health video series also includes perspectives from CF care team members and school personnel on topics such as sending a child to day care, partnering with your child’s school, managing treatments with after school activities, school transitions, learning independence and transitioning from pediatric to adult care.


Introduction to Living with CF

Ginny Drapeau, BSN, RN, CCRP, clinical research coordinator at Children’s Medical Center and manager of the Living with CF DVD project, introduces this video series on transitioning from day care to high school.

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Going to Day Care

Four families share their experiences about sending their child to day care and talk about germs, infection prevention and educating day care staff.

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Partnering with Your School

Families, a school health coordinator, care provider and social worker talk about partnering with the school staff to accommodate the specific needs of students with CF, including 504 plans.

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Activities

Families, a nurse practitioner, care provider and physical therapist talk about balancing treatments with after school and summer activities.

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School Transitions

Families, a school teacher, school health coordinator, hospital based teacher and child life specialist talk about transitioning from elementary to middle and high school, treatment at school and school work while in the hospital.

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Friendship and Learning Independence

Families, a friend and a care provider talk about the importance of being open and honest with friends about CF, moving toward greater independence and dividing up responsibilities of care.

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Transition from Pediatric to Adult Care

Families and social workers talk about managing the transition from pediatric to adult care and the importance of asking questions.

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Celebrate Your Child’s Transitions

Leslie Hazle, MS, RN, CPN, talks about this important time when parents learn to step back as their child learns how to live an active life with school and CF.

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Hope for the Future of CF

Robert J. Beall, Ph.D., president and CEO of the Cystic Fibrosis Foundation, shares a message on how the journey of living with CF continues to evolve, now marked by transitions into adulthood where the opportunities for continual improvements in the quality of life for people living with CF have never been as great.

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Note:
To embed these videos on your own website or blog, please visit the CF Foundation’s YouTube Channel and click on the Living with CF from Day Care to High School Videos playlist.

The Cystic Fibrosis Foundation is an accredited charity of the Better Business Bureau.