A Teacher's Guide to Cystic Fibrosis

Teachers Guide to CF

Download the PDF A Teacher's Guide to CF.

Parents of children with cystic fibrosis (CF) may be anxious about whether a school or daycare can accommodate their child’s special needs. Students with CF may worry about being different from their peers. As a teacher, you can provide reassurance to both parents and students by working with them and CF health care professionals to maximize your student’s overall learning experience, while helping to maintain his or her health.

The following answers to frequently asked questions are intended to help teachers understand and support students who have CF.

What is cystic fibrosis?

CF is a life-threatening genetic disease. It is not contagious and does not affect cognitive ability. In people with CF, a defective gene causes the body to produce unusually thick, sticky mucus that can clog the lungs, pancreas and other organs. This buildup can lead to severe respiratory and digestive problems that may warrant special accommodations in a school setting.

CF affects each individual differently. Some people with CF are in good general health, while others are severely limited by the disease and are unable to attend school regularly. It is important that you meet with your student’s parents and CF health care providers to determine the best way to support your student’s unique needs.

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What are the nutritional needs of a person with CF?

In people with CF, mucus can obstruct the digestive system and prevent proper absorbtion of nutrients, which can slow growth. To boost growth and nutrition, children with CF follow a special diet, which includes pancreatic enzymes, vitamins and high-calorie, high-fat foods.

Meet with your student and his or her parents about ways to help your student maintain a healthy diet. Accommodations may include allowing the child with CF more time to eat during lunch, to snack throughout the school day and to take enzymes and nutritional supplements to increase calories.

Although enzymes help with digestion, people with CF may still experience abdominal pain, foul-smelling gas and/or diarrhea. This is why it is important to:

  • Give a student with CF frequent access to the bathroom.
  • Not draw attention to the student if she or he passes gas frequently.
  • Make the student feel comfortable about going to the bathroom when needed.

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Why is coughing important?

People with CF tend to cough a lot to clear mucus from their lungs. In a classroom, a student with CF may feel self-conscious about coughing in front of others. You can help your student feel more comfortable by:

  • Making it easy for the student to drink water at his or her desk or slip out of the classroom for water.

  • Not drawing attention to the student who is coughing.

  • Encouraging your student to keep a box of tissues to cough into and a trashcan to dispose of the tissue near their desk.

  • Allowing the student to clean his or her hands with alcohol-based hand gel at their desk.

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Should a child with CF exercise?

Although some people with CF have difficulty breathing and may tire easily, regular exercise is generally encouraged because it helps loosen the mucus that clogs the lungs and strengthen the muscles used to breathe. Exercise also promotes healthy social interaction with peers.

To help determine the appropriate level of physical activity for your student:

  • Talk to the student and parents about the activities they are comfortable with.

  • Include the student in all games and activities in which he or she is interested in.

Dehydration is a real concern for people with CF who are active because they can lose more salt when they sweat than those who do not have CF. During exercise, encourage your student to:

  • Drink 6 to 12 ounces of fluid every 20 to 30 minutes.
  • Consider sports drinks with added carbohydrates and salt.
  • Avoid drinks with caffeine, which can increase fluid loss.

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Why is infection prevention and control important?

The thick mucus that builds up in the lungs of people with CF allows germs to thrive and can lead to serious lung infections. As a result, people with CF are more vulnerable to getting sick by catching germs from others who are sick and particularly from other people who also have CF.

The Cystic Fibrosis Foundation’s Infection Prevention and Control Guidelines help people with CF, their families and caregivers reduce the spread of germs in everyday life, including school settings, and provide the following recommendations:

  • Keep a safe 6-foot distance (2 meters) from others with a cold, flu or an infection in all settings, both outdoors and especially indoors, such as in school.

  • Encourage everyone to wash hands by making soap and water and/or alcohol-based hand gel readily available in the classroom. Cleaning hands is particularly encouraged after using commonly shared items (e.g., pencil sharpener, lab equipment).

  • Avoid sharing personal items such as straws or eating utensils.

  • Encourage everyone to cover their cough or sneeze with a tissue. Throw the tissue away immediately, then wash or clean hands. If a tissue is not available, encourage everyone to cough or sneeze into their inner elbow.

While lung infections in people with CF pose no danger to the public, they do pose a significant danger to others with CF. If you are aware of there being more than one person with CF at your school (unless they are siblings from the same household), it is essential that they keep a safe distance from each other. Every effort should be made to keep people with CF at least 6 feet apart from each other, and they should not sit near each other in class or on a school bus and never share water bottles or other personal items.

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What is an Individualized Education Plan?

Although most people with CF do not have a visible disability, they may require special accommodations for frequent absences or medical treatments. Students and their families may want to outline these accommodations in what is known as an Individualized Education Plan (IEP), or 504 Plan.

These plans protect the rights of people with CF to access free and appropriate education in public school settings. As a teacher of a student with CF, you play an important role by providing input and implementing these plans with your student, their families and your colleagues to ensure your student’s specific needs are met so that they can achieve their academic goals.

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For more information on CF, the CF Foundation and how you can help, please:

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Additional Resources

  • Get Germ Smart – Read and download posters, animated videos and a fact sheet on germ basics that can be used in the classroom.

  • Tip Sheets – Find easy-to-reference ways to guard against germs in health care settings and everyday life.

  • Webcasts – Hear from the experts on infection prevention and control in CF.

  • Staying Healthy – Learn more about maintaining health while living with CF.

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Updated: 8/20/2014