When the Cystic Fibrosis Foundation was established in 1955, most children did not live to attend elementary school. Today, the predicted median age of survival is 37 years, thanks—in large part—to the care provided though a national network of CF Foundation-accredited centers.
The network provides expert care for people with CF. In fact, the National Institutes of Health has cited the network as a model of effective and efficient health care delivery for a chronic disease.
The Foundation funds and accredits 115 cystic fibrosis care centers nationwide, including 95 adult programs. In addition, more than 50 affiliate programs provide multi-disciplinary care for CF with Foundation support. Staffed by dedicated medical professionals, these centers provide specialized CF care.
Each center undergoes thorough review by the CF Foundation’s Care Center Committee before it receives accreditation and funding. This review for accreditation occurs every year.
Care centers also participate in CF clinical research and work to educate medical professionals about CF and the care people living with the disease require. Data from people with CF is collected in the national CF Foundation Patient Registry, which serves as a rich resource for your CF health care provider and CF researchers to track the health of people living with CF in the United States.
CF Care Centers
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Updated 01/23/08
