The reporting of care center data is part of a comprehensive quality improvement (QI) initiative launched in 2002 to speed up the rate of improvement in care throughout the CF Foundation's care center network.
The initiative includes training of care center staff in QI, providing tools to identify and implement best practices, and building stronger partnerships between people with CF, families and their care center clinicians.
The CF quality improvement work is based on the seven worthy goals to improve CF care. These are:
- To make people with CF and their families full members of the care team;
- To help people with CF attain normal growth and nutrition status;
- To ensure that people with CF receive respiratory therapies that keep lung function steady and to diagnose respiratory infections early;
- To decrease the spread of germs between people with CF;
- To prevent complications and/or to diagnose and treat them early;
- To provide care regardless of race, age, education or insurance coverage; and
- To support all transplantation and end-of-life care decisions.
To learn more about the QI initiative and how care center data is leading to action and strengthening the partnership between people with CF, their families and CF care centers watch two Web casts: “Quality CF Care is More Than the Numbers” and “One Team’s Story: Raising the Bar for CF Care.” You can also read more about the seven worthy goals in It's All About Suzy: Quality Improvement In CF Care or the national CF Foundation Patient Registry Report.
Please remember that the numbers tell only part of the story. This information is provided to educate and inspire action, rather than to pass judgment. By sharing this data, it is hoped that the partnership between you and your care center will be strengthened. Take this opportunity to work together to find ways to make your or your child’s health and your care center the best it can be.
These data were reported to the CF Foundation's Patient Registry for the period of January 1, 2006 through December 31, 2006.
You can contact the CF Foundation by sending an e-mail to info@cff.org or call us at (800) FIGHT CF (344-4823).
Access Care Center Data
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Updated 01/23/08
