Cystic Fibrosis Foundation - Click here for homepage
Stay Informed  |  Volunteer  |  Clinical Trials

In This Section

Quick Links

Find a Chapter

Get Assistance

Get Assistance - Cox Boys
We are here to help people with CF get the insurance coverage they need. Hear how the Foundation helped the Cox family.

Join us on Facebook!  Facebook 
Follow us on Twitter!   Twitter
Follow us on Instagram!  Instagram 
Add us to your circle in Google+!

Google+ 

Subscribe to our channel on YouTube!  YouTube  


 

 

Bookmark and Share   Print  

In The Spotlight

Trevor Forshee

trevor-family

Trevor Forshee, who has CF and speaks openly and honestly about his disease, recently celebrated his 14th birthday. Here he’s pictured with mom Sherry, step dad Kevin and sister Macy.

For those who know him well, Trevor Forshee, 14, is an open book. He talks about having cystic fibrosis openly with his friends — and many help support him by walking in the Cystic Fibrosis Foundation’s largest national fundraiser, Great Strides.

But when Trevor wrote a poem about cystic fibrosis for a school assignment, he never dreamed that he would one day read it aloud to hundreds of his classmates.

“I wrote about CF because it’s a true story about me and the lung infections I get,” Trevor said.

He showed the poem to his teacher, who submitted it to the school’s counselor. Not long after, Trevor was asked to read his poem in front of his entire school.

“I was really nervous. I have major stagefright and I was worried about being judged,” Trevor said. “But after I read my poem, I think people learned more about what it’s like to have CF. It felt good.”

Living Life to the Fullest

trevor-basketball

Trevor, who loves sports and recently joined his high school marching band, has this message for people with CF: “I want all people with CF to know that just because you have a disease doesn’t mean you have to act or be treated differently. You can still do the same things everyone else does.”

Like most people with the disease, Trevor was diagnosed with CF as a baby.

Sherry, his mother, had never before heard of cystic fibrosis and immediately turned to the Foundation for hope and answers. As soon as she learned that there is no cure for the disease, Sherry and her family started a Great Strides team called Trevor’s Troop.

“My dream is that a cure will be found within Trevor’s lifetime so that he doesn’t have to spend so much of his time completing his treatments,” Sherry said. “I want him to live the fullest life he can.”

Trevor has been hospitalized twice due to complications from the disease and must complete two hours of breathing treatments each day just to stay healthy. Still, he makes time for doing what he loves: playing sports and having fun with friends.

Trevor plays basketball, loves to swim and plans to try out for the high school baseball team this spring. He’s also a member of his school’s marching band, where he plays percussion.

“I always tell people that even though I have this disease, I should be treated the same as everyone else. I think my poem helped friends and teachers understand that,” Trevor said.

Superstar

trevor-award

As part of a class assignment, Trevor wrote a poem about what it’s like living with cystic fibrosis. He was honored for his poem and his courageous fight against the disease at gala in St. Louis.

Trevor’s poem earned him a $5,000 award, which was presented to him during the school assembly. He was also recognized for his tenacity and bravery at Night of the Superstars, an evening that honors children and young adults who overcome great odds.

During the evening, Trevor walked the red carpet and got to hang out with hockey legend Reed Lowe. He says that being honored for the positive, healthy way he lives his life gave him a great sense of pride and accomplishment.

“I fight my CF every day, and it doesn’t bring me down. I’m still able to play sports and have fun with my friends,” Trevor said. “I want all people with CF to know that just because you have a disease doesn’t mean you have to act or be treated differently. You can still do the same things everyone else does.”


Shake Shake
is the sound my treatment makes.
I don’t want much
just to be normal.
Spit Spit
out my mucus.
Shake Shake...
is the sound my treatment makes.

I don’t know where I am
I appear to be in a hospital room.
My mother is crying,
My dad is worried.
Shake Shake
is the sound my treatment makes
I overhear with my ears
I have a lung infection,
It’s getting worse
they put a iv in to give me medicine.
Shake Shake
is the sound my treatment makes.

My infection clears up
im okay,
lucky to survive
I keep fighting.
Everyday I know i'm not normal
but I know how lucky I am to be me,
Shake Shake
is the sound my treatment makes.

The Cystic Fibrosis Foundation is an accredited charity of the Better Business Bureau.