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In the Spotlight

Heather Summerhayes Cariou

Heather Summerhayes Cariou, author of Sixty-Fives Roses: A Sister's Memoir.
Heather Summerhayes Cariou made a
promise to her sister, Pam, 20 years ago.
In 2006, she fulfilled that promise.

Heather Summerhayes Cariou made a promise to her sister, Pam, 20 years ago. In 2006, she fulfilled that promise and published a memoir about her sister’s life and courageous battle with cystic fibrosis, Sixty-five Roses: A Sister’s Memoir.

Published in Canada by McArthur & Company, Sixty-five Roses has been newly released in the United States and a portion of its sales will benefit the Cystic Fibrosis Foundation, as well as the Canadian Cystic Fibrosis Foundation.

In her book, Heather recounts that in 1957, when Pam was diagnosed, the medical community knew little about CF. Her parents were told that there was no viable treatment and no cure for the disease.

Determined to fight for their child’s life, Doug and Donna Summerhayes, from the small Canadian town of Brantford, Ontario, met with other concerned parents and founded the Canadian Cystic Fibrosis Foundation.

From that time on, Heather, like her parents, became a spokesperson on behalf of people with CF. In writing Sixty-five Roses, she continues to speak out on behalf of the CF community.

“I wanted to honor my promise to Pam,” Cariou says. “ but I also wanted to acknowledge and comfort families who had to live with CF or any other kind of chronic childhood illness.”

Since the book was first published in Canada, she has received many e-mails from families with CF and other diseases, thanking her for articulating their own feelings.

Despite the enormous struggle of life with CF, Pam remained staunchly optimistic. “I enjoyed most every moment of my life, whether it was up or down,” she said. “There was always something in the world that was beautiful that you could take from, and every experience could mean something if you looked at it that way.”

Sixty-five Roses is a tribute to Pam’s indomitable spirit. Heather says, “I really feel like Pam and I are out there together, hand in hand, putting her legacy of courage and hope out there.”

For more information on Sixty-five Roses: A Sister’s Memoir, visit www.sixtyfiverosesthebook.com.

Posted 05/08/08

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Previously Featured

 

In the Spotlight -- Robert Plante
For the past 18 years, Robert, a Special Olympics athlete, has dedicated an enormous amount of time and energy walking in support of the CF Foundation. He walks in memory of his friend Doug Jones who lost his battle to CF in 1992 at age 43. 02/19/08
Picture for In the Spotlight -- Robert Plante
In the Spotlight -- Patrick Joyce
Patrick Joyce has a real passion for Irish step dancing. His hard work has helped him dance his way to the top. In April 2006, his dance team competed in the World Championships of Irish Dancing—known as the “Olympics of Irish dance”—in Belfast, Ireland. 11/13/07
Picture for In the Spotlight -- Patrick Joyce
In the Spotlight -- Beth Sufian
By opening her own law firm, Beth Sufian, 41, wanted people to know that in the struggle to meet the financial demands of CF, there is help. 06/12/07
Picture for In the Spotlight -- Beth Sufian
In the Spotlight -- Randy Sims
Barely a year after his double-lung transplant, Randy Sims competed in his first ever U.S. Transplant Games, playing golf and basketball, among many other sports. 04/02/07
Picture for In the Spotlight -- Randy Sims
In the Spotlight -- La Habra Volunteers
After a fire destroyed the La Habra Office (Calif.), volunteers redoubled their fund-raising efforts to ensure people with CF, including the Cowan triplets, have hope for a better future. 03/01/07
Picture for In the Spotlight -- La Habra Volunteers
In the Spotlight -- Roland Merullo
Profoundly affected by his daughter's CF diagnosis, Roland Merullo became inspired and wrote a fictional tale about a woman who refused to be defined by her disease. 02/07/07
Picture for In the Spotlight -- Roland Merullo
In the Spotlight -- Lo Detrich
At just 22 years old, Lauren “Lo” Detrich could barely walk 10 feet. She spent most of her days sitting in a wheelchair, attached to an oxygen tank because of cystic fibrosis. “I was so sick that I didn’t really know what was going on. I was just so focused on trying to breathe.” 12/05/06
Picture for In the Spotlight -- Lo Detrich
In the Spotlight -- Camiah McNeal
At 11 years old, Camiah McNeal was the youngest recitalist to play at Chicago's Orchestra Hall. 10/14/06
Picture for In the Spotlight -- Camiah McNeal
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