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 Watch NIH Director Dr. Francis Collins sing a song he wrote for the CF community at the 2009 North American CF Conference.
 Watch NIH Director Dr. Francis 
 Collins sing a song he wrote for
 the CF community at the 2009
 North American CF Conference.

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In the Spotlight -- Previously Featured

The following extraordinary individuals have been previously featured "In the Spotlight."


04/22/2009   Erik Nieman -- The Next Michael Phelps?
Half boy, half fish? Watching nine-year-old Erik Nieman streak through the water, you might think so. He is racking up swimming awards right and left. Read about his incredible determination.
Erik Nieman -- The Next Michael Phelps?
Spotlight AI - Leah Orr
10/07/2008   In the Spotlight -- Leah Orr
Leah Orr doesn’t miss a trick when it comes to raising money for the CF Foundation, Her “game plan” is second to none and inspired by her daughter Ashley.
09/03/2008   In the Spotlight -- David Tarnow
Pedaling 500 miles in a week would be a major achievement for any adult, but for David Tarnow, diagnosed with CF at age 3, it’s an even greater accomplishment.
Spotlight-AI-David-Tarnow
Spotlight AI -- Heather Summerhayes Cariou
05/08/2008   In the Spotlight -- Heather Summerhayes Cariou
Heather Summerhayes Cariou made a promise to her sister, Pam, 20 years ago. In 2006, she fulfilled that promise and published a memoir about her sister’s life and courageous battle with cystic fibrosis, "Sixty-five Roses: A Sister’s Memoir."
02/19/2008   In the Spotlight -- Robert Plante
For the past 18 years, Robert, a Special Olympics athlete, has dedicated an enormous amount of time and energy walking in support of the CF Foundation. He walks in memory of his friend Doug Jones who lost his battle to CF in 1992 at age 43.
Spotlight AI -- Robert Plante
In the Spotlight - Patrick Joyce
11/13/2007   In the Spotlight -- Patrick Joyce
Patrick Joyce has a real passion for Irish step dancing. His hard work has helped him dance his way to the top. In April 2006, his dance team competed in the World Championships of Irish Dancing—known as the “Olympics of Irish dance”—in Belfast, Ireland.
06/12/2007   In the Spotlight -- Beth Sufian
By opening her own law firm, Beth Sufian, 41, wanted people to know that in the struggle to meet the financial demands of CF, there is help.
In the Spotlight - Beth Sufian
Randy Sims
04/02/2007   In the Spotlight -- Randy Sims
Barely a year after his double-lung transplant, Randy Sims competed in his first ever U.S. Transplant Games, playing golf and basketball, among many other sports.
03/01/2007   In the Spotlight -- La Habra Volunteers
After a fire destroyed the La Habra Office (Calif.), volunteers redoubled their fund-raising efforts to ensure people with CF, including the Cowan triplets, have hope for a better future.
In Spotlight - Cowan
Spotlight - Roland Merullo
02/09/2007   In the Spotlight -- Roland Merullo
Profoundly affected by his daughter's CF diagnosis, Roland Merullo became inspired and wrote a fictional tale about a woman who refused to be defined by her disease.
12/05/2006   In the Spotlight -- Lo Detrich
At just 22 years old, Lauren “Lo” Detrich could barely walk 10 feet. She spent most of her days sitting in a wheelchair, attached to an oxygen tank because of cystic fibrosis. “I was so sick that I didn’t really know what was going on. I was just so focused on trying to breathe.”
Lo Detrich
Spotlight - Camiah McNeal
10/14/2006   In the Spotlight -- Camiah McNeal
At 11 years old, Camiah McNeal was the youngest recitalist to play at Chicago's Orchestra Hall.
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The Cystic Fibrosis Foundation is an accredited charity of the Better Business Bureau.   The Cystic Fibrosis Foundation has a 4-star rating from Charity Navigator, America's largest independent evaluator of charities.