In The Spotlight
But when Trevor wrote a poem about cystic fibrosis for a school assignment, he never dreamed that he would one day read it aloud to hundreds of his classmates.
“I wrote about CF because it’s a true story about me and the lung infections I get,” Trevor said.
He showed the poem to his teacher, who submitted it to the school’s counselor. Not long after, Trevor was asked to read his poem in front of his entire school.
“I was really nervous. I have major stagefright and I was worried about being judged,” Trevor said. “But after I read my poem, I think people learned more about what it’s like to have CF. It felt good.”Living Life to the Fullest
Sherry, his mother, had never before heard of cystic fibrosis and immediately turned to the Foundation for hope and answers. As soon as she learned that there is no cure for the disease, Sherry and her family started a Great Strides team called Trevor’s Troop.
“My dream is that a cure will be found within Trevor’s lifetime so that he doesn’t have to spend so much of his time completing his treatments,” Sherry said. “I want him to live the fullest life he can.”
Trevor has been hospitalized twice due to complications from the disease and must complete two hours of breathing treatments each day just to stay healthy. Still, he makes time for doing what he loves: playing sports and having fun with friends.
Trevor plays basketball, loves to swim and plans to try out for the high school baseball team this spring. He’s also a member of his school’s marching band, where he plays percussion.
“I always tell people that even though I have this disease, I should be treated the same as everyone else. I think my poem helped friends and teachers understand that,” Trevor said.Superstar
During the evening, Trevor walked the red carpet and got to hang out with hockey legend Reed Lowe. He says that being honored for the positive, healthy way he lives his life gave him a great sense of pride and accomplishment.
“I fight my CF every day, and it doesn’t bring me down. I’m still able to play sports and have fun with my friends,” Trevor said. “I want all people with CF to know that just because you have a disease doesn’t mean you have to act or be treated differently. You can still do the same things everyone else does.”
I don’t know where I am
My infection clears up