Improving Care Across the Board
The following is a report from the CF care center at Arkansas Children’s Hospital about getting people with CF and their families involved in quality improvement through the development of a Family Advisory Board (FAB).Download this story as a PDF. Introduction
How families perceive the quality of care is an important part of this objective. Our level of family involvement has been sporadic. We have received input only as requested through various surveys and through parent attendance at annual Parent Resource events.
During our annual Parent Resource day in September 2005, we presented the ideas of transparency of CF care center data and partnerships with families. Our care center set a goal to establish a Family Advisory Board to assist with the design and implementation of pilot projects, educational materials, family support services and active participation within the care center as a whole.
To ensure broad representation, the care center included a variety of ages and geographical locations, as well as care center physicians. The major goals of the FAB include:
During our initial FAB meeting on March 25, 2006, we introduced the members to each other, completed hospital orientation and established Board policies. Today, we continue to incorporate the FAB in our care center’s quality improvement activities and strengthen the working relationship between the FAB and the current care center staff.