Video Series: Information for Families with an Infant with CF
For parents of infants with cystic fibrosis, the diagnosis marks the beginning of a journey and a new learning experience. To help you on this journey, parents of children with CF share their personal experiences about how they cared for their new baby during the first year.
The video series below includes perspectives from CF care team members and covers topics such as diagnosis, nutrition, airway clearance, and balancing daily life and CF care and support.
Preston W. Campbell, III, M.D. executive vice president for medical affairs of the Cystic Fibrosis Foundation gives a message of hope to families whose infants have been diagnosed with CF.
Ginny Drapeau, BSN, RN, CCRP, clinical research coordinator at Connecticut Children's Medical Center and manager of the Infant Care DVD project, talks about the purpose of this video.
Parents of children with CF talk about how they felt and what they did when they first learned their child had CF.
A dietitian and parents of children with CF talk about proper nutrition, managing GI issues, and show how to give enzymes to infants with CF.
A respiratory therapist and parents of children with CF talk about managing lung health, and show the different techniques used for airway clearance.
Parents of children with CF talk about how they coped with the disease and found balance in daily life.
An adult with CF talks about how she has managed her disease to accomplish many of her life goals.