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We are here to help people with CF get the insurance coverage they need. Hear how the Foundation helped the Cox family.

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Partnering for Care

Listen as CF experts talk about managing life with CF including topics such as transitioning to adult care, lung transplantation, life skills, insurance and fertility.

Have questions about the following webcasts? Submit your questions via email now.




Partnering for Care Part 1:
Partnering for Your Child with CF
Partering for Your Child with CF 

2010 - Learn about how you and your child with CF can be full members of the CF team and how to manage CF.

Speaker: Peter Mogayzel, M.D., Ph.D.

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Partnering for Care Part 2:
Partnering as an Adult with CF
 Partnering as an Adult with CF

2010 - Learn about how adults with CF can be a full member of the CF team and how to manage CF.

Speaker: Michael Boyle, M.D., F.C.C.P.

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Partnering for Care Part 3:
Transition to Adult CF Care
 Transition to Adult CF Care

2010 - Peter Mogayzel, M.D, Ph.D. and Michael Boyle, M.D, F.C.C.P. discuss how you and your teen with CF can partner with your CF team during transition to adult CF care.

Speakers: Peter Mogayzel, M.D., Ph.D. and Michael Boyle, M.D., F.C.C.P.

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Partnering for Care Series:
Help Your Dietitian Help You Thrive
 Help Your Dietician Help You Thrive

2010 - Amanda Leonard, M.P.H., R.D., C.D.E. and Marsha E. Davis, R.D., L.D.N., C.D.E. discuss how to partner with your CF dietitian to learn how to maintain a healthy CF weight and a healthy CF diet.

Speakers: Amanda Leonard, M.P.H., R.D., C.D.E. and Marsha E. Davis, R.D., L.D.N., C.D.E.

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Partnering for Care Series:
Help Your Respiratory and Physical Therapist Help You Thrive
 Help Your Respiratory & Physical Therapist Help You Thrive

2010 - Karen von Berg, P.T.II and Andrea Honesto, R.R.T. discuss how to partner with your CF respiratory and physical therapist to learn how to stay healthy and active.

Speakers: Karen von Berg, P.T.II and Andrea Honesto, R.R.T.

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Partnering for Care Series:
Help Your Nurse Help You Thrive
Help Your Nurse Help You Thrive

2010 - Meghan Ramsay, M.S.N., C.R.N.P. discusses how to partner with the nurse on your cystic fibrosis care team.

Speaker: Meghan Ramsay, M.S.N., C.R.N.P.

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Partnering for Care Series:
Help Your Social Worker & Psychologist Help You Thrive
Helping Your Social Worker & Psychologist Help You Thrive

2010 - Cindy Barnett, M.S.W., L.C.S.W.-C and Cynthia Ward, Psy.D. discuss how to partner with your social worker and psychologist.

Speakers: Cindy Barnett, M.S.W., L.C.S.W-C and Cynthia Ward, Psy.D.

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Partnering for Care Series:
CF Foundation-Accredited Care Centers
CF Foundation-Accredited Care Centers

2010 - Peter Mogayzel, M.D., Ph.D., discusses how to partner with your Foundation-accredited care center.

Speaker: Peter Mogayzel, M.D., Ph.D.

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Partnering for Care Part 4:
Partnering when Thinking about Lung Transplantation
 Partnering when Thinking about Lung Transplantation

2010 - Peter Mogayzel, M.D, Ph.D. and Michael Boyle, M.D, F.C.C.P. discuss how to partner with your CF team, what questions to ask, and what factors to consider when thinking about lung transplantation.

Speakers: Peter Mogayzel, M.D., Ph.D. and Michael Boyle, M.D., F.C.C.P.

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CF Healthcare Coverage: It Takes Teamwork Part 1: Private Insurance and Patient Assistance Programs
Private Insurance and Patient Assistance Programs  2009 - Learn about how to access, maintain, and work with your CF care team for healthcare coverage through private insurance and patient assistance programs.

Speakers: Carol Chace, L.I.C.S.W. and Maria Thomas

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CF Healthcare Coverage: It Takes Teamwork Part 2: Legal Issues and Government Programs
Legal Issues & Government Programs   2009 - Learn about your legal rights and how to work with your CF care team for healthcare coverage through state and government programs.

Speakers: Beth Sufian, J.D., CF Legal Information Hotline and Carol Chace, L.I.C.S.W.

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Patient Advocacy: Issues and Answers for CF for School and Employment
Patient Advocacy: Issues and Answers for CF for School and Employment  2009 - Hear Beth Sufian J.D. and Suzanne Cumming, R.N. and learn what your legal rights are related to education and employment.

Speakers: Beth Sufian, J.D., and Suzanne Cumming, R.N.

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Partnering for Improvement of CF Care
Partnering for Improvement of CF Care 

2012 - Learn how you can partner with your CF healthcare provider to improve your care and care for others at your CF care center.

Speakers: Denise Wold, adult with CF and Sandy McAllister, R.N.

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Quality CF Care is More Than the Numbers
Quality CF Care is More Than the Numbers 

2006 - Stressing the importance of home care and quality improvement measures in centers, the roll-out of the release of health measures of all accredited care centers and what the numbers really mean is addressed here.

Speakers: H. Worth Parker, M.D.; Don Kreis; Bruce Marshall, M.D.; Leslie Hazle, M.S., R.N.

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Building Life Skills to Manage CF
Building Life Skills for CF  2006 - Fitting time-consuming therapies into a busy day can be hard – this panel of a social worker, an adult with CF, and a parent of a child with CF discuss how to fit CF care into life, so there’s still time left for work and play.

Speakers: Joan Finnegan Brooks; Dianne Silliman;
Joanne Stevens, LCSW; Leslie Hazle, M.S., RN

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One Team's Story: Raising the Bar for CF Care
Raising the Bar for CF Care  2005 - This Web cast highlights quality improvement endeavors and the initiative to implement quality improvement measures at all care centers.

Speakers: Jim D. Acton, M.D., Patricia Joseph, M.D., Bruce Marshall, M.D., Honor Page, Lisa Reuss

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