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Listen as CF experts talk about managing life with CF including topics such as transitioning to adult care, lung transplantation, life skills, insurance and fertility.
Have questions about the following webcasts? Submit your questions via email now.
Partnering for Care Part 1:
Partnering for Your Child with CF |
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2010 - Learn about how you and your child with CF can be full members of the CF team and how to manage CF.
Speaker: Peter Mogayzel, M.D., Ph.D.
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Partnering for Care Part 2:
Partnering as an Adult with CF |
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2010 - Learn about how adults with CF can be a full member of the CF team and how to manage CF.
Speaker: Michael Boyle, M.D., F.C.C.P.
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Partnering for Care Part 3:
Transition to Adult CF Care
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2010 - Peter Mogayzel, M.D, Ph.D. and Michael Boyle, M.D, FCCP discuss how you and your teen with CF can partner with your CF team during transition to adult CF care.
Speakers: Peter Mogayzel, M.D., Ph.D. and Michael Boyle, M.D., FCCP.
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Partnering for Care Series:
Help Your Dietitian Help You Thrive
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2010 - Amanda Leonard, M.P.H., RD, CDE and Marsha E. Davis, RD, LDN, CDE discuss how to partner with your CF dietitian to learn how to maintain a healthy CF weight and a healthy CF diet.
Speakers: Amanda Leonard, M.P.H., RD, CDE and Marsha E. Davis, RD, LDN, CDE
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Partnering for Care Series:
Help Your Respiratory and Physical Therapist Help You Thrive
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2010 - Karen von Berg, PTII and Andrea Honesto, RRT discuss how to partner with your CF respiratory and physical therapist to learn how to stay healthy and active.
Speakers: Karen von Berg, PTII and Andrea Honesto, RRT.
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Partnering for Care Series:
Help Your Nurse Help You Thrive
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2010 - Meghan Ramsay, M.S.N., CRNP discusses how to partner with the nurse on your cystic fibrosis care team.
Speaker: Meghan Ramsay, M.S.N., CRNP.
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Partnering for Care Series:
Help Your Social Worker & Psychologist Help You Thrive |
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2010 - Cindy Barnett, M.S.W., LCSW-C and Cynthia Ward, Psy.D. discuss how to partner with your social worker and psychologist.
Speakers: Cindy Barnett, M.S.W., LCSW-C and Cynthia Ward, Psy.D.
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Partnering for Care Series:
CF Foundation-Accredited Care Centers |
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2010 - Peter Mogayzel, M.D., Ph.D., discusses how to partner with your Foundation-accredited care center.
Speaker: Peter Mogayzel, M.D., Ph.D.
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Partnering for Care Part 4:
Partnering when Thinking about Lung Transplantation
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2010 - Peter Mogayzel, M.D, Ph.D. and Michael Boyle, M.D, FCCP discuss how to partner with your CF team, what questions to ask, and what factors to consider when thinking about lung transplantation.
Speakers: Peter Mogayzel, M.D., Ph.D. and Michael Boyle, M.D., FCCP
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| CF Healthcare Coverage: It Takes Teamwork Part 1: Private Insurance and Patient Assistance Programs |
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2009 - Learn about how to access, maintain, and work with your CF care team for healthcare coverage through private insurance and patient assistance programs.
Speakers: Carol Chace, LICSW and Maria Thomas, manager, CF Patient Assistance Foundation
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| CF Healthcare Coverage: It Takes Teamwork Part 2: Legal Issues and Government Programs |
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2009 - Learn about your legal rights and how to work with your CF care team for healthcare coverage through state and government programs.
Speakers: Beth Sufian, J.D., CF Legal Information Hotline and Carol Chace, LICSW
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| Patient Advocacy: Issues and Answers for CF for School and Employment |
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2009 - Hear Beth Sufian J.D. and Suzanne Cumming, R.N. and learn what your legal rights are related to education and employment.
Speakers: Beth Sufian, J.D., CF Legal Information Hotline and Suzanne Cumming, R.N.
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| Quality CF Care is More Than the Numbers |
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2006 - Stressing the importance of home care and quality improvement measures in centers, the roll-out of the release of health measures of all accredited care centers and what the numbers really mean is addressed here.
Speakers: H. Worth Parker, M.D.; Don Kreis; Bruce Marshall, M.D.; Leslie Hazle, M.S., RN
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| Building Life Skills to Manage CF |
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2006 - Fitting time-consuming therapies into a busy day can be hard – this panel of a social worker, an adult with CF, and a parent of a child with CF discuss how to fit CF care into life, so there’s still time left for work and play.
Speakers: Joan Finnegan Brooks; Dianne Silliman;
Joanne Stevens, LCSW; Leslie Hazle, M.S., RN
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| One Team's Story: Raising the Bar for CF Care |
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2005 - This Web cast highlights quality improvement endeavors and the initiative to implement quality improvement measures at all care centers.
Speakers: Jim D. Acton, M.D., Patricia Joseph, M.D., Bruce Marshall, M.D., Honor Page, Lisa Reuss
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