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Research

Find information on how to participate in clinical trials and get the latest updates about CF research.

Have questions about the following webcasts? Submit your questions via email now.



Roadmap to a Cure: Advancing New CF Treatments – Presentation 
Roadmap to a Cure: Advancing New CF Treatments Presentation

2013 – Hear an update on CF therapies in clinical trials and other research being done to improve the lives of people with CF.

Speaker: Bonnie Ramsey, M.D.

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Roadmap to a Cure: Advancing New CF Treatments – Q&A
Roadmap to a Cure: Advancing New CF Treatments Q&A

2013 – Hear answers to questions from the CF community about clinical research.

Speaker:
Bonnie Ramsey, M.D.

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What Might Happen in a CF Clinical Trial 
Webcast - What Might Happen in a Clinical Trial

2012 – Hear what you or your child might expect when joining a CF clinical trial and why people with CF of all ages should ask about joining one.

Speakers: David Orenstein, M.D., M.A. and Warren and Lyndsey Love

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Behind the Scenes of a CF Clinical Trial
Research Webcasts - Behind the Scenes

2012 - Learn why people with CF should think about joining a clinical trial and what happens before you can join one.  

Speakers: David Orenstein, M.D., M.A. and Elizabeth Hartigan, M.P.H., R.N., C.R.M.

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Thinking about Joining and Enrolling in a CF Clinical Trial 
Research Webcasts - Thinking About Joining a CF Clinical Trial

2012 - Learn what questions to ask when thinking about joining a CF clinical trial and hear an adult with CF talk about his experience. 

Speakers: Jon Whitbred, Adult with CF and Adrienne DeRicco, B.S.N., R.N., C.C.R.N.

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The CF Clinical Trial is Done, Now What?
Research Webcasts - Clinical Trial is Done Now What

2012 - Learn what happens after a CF clinical trial, how to learn the results and what it means for your CF care.

Speakers: Daniel Weiner, MD and Sandra Hurban, B.S.N., R.N., C.C.R.N.

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CF Clinical Research: Learn, Ask, Join – The Basics
CF Clinical Research Web Cast November 2009 

2009 - Elizabeth Hartigan, M.P.H., RN, CRM, discusses the basic principles for clinical research and the steps to take in order to participate in a clinical trial.

Speakers: George Retsch-Bogart, M.D.; Elizabeth Hartigan, M.P.H., R.N., C.R.M.

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