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On this page
Downloads and System Requirements
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Part 1: Infection Control & Germs
August 11, 2009
Speakers: John LiPuma, M.D.; Lisa Saiman, M.D.
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| Learn about how germs affect people with CF and ways to prevent germs from spreading. |
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Part 2: Everyday Life with CF and Infection Control
August 11, 2009
Speakers: Evin Green; John LiPuma, M.D.; Lisa Saiman, M.D.; Cathy Wood
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| An adult with CF and a parent of a child with CF talk with infectious disease experts about commonly asked questions relating to cystic fibrosis and germs. |
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CF Healthcare Coverage: It Takes Teamwork Part 1:
Private Insurance and Patient Assistance Programs
April 30, 2009
Carol Chace, LICSW, Children’s National Medical Center and Maria Thomas, manager, CF Patient Assistance Foundation
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Learn about how to access, maintain, and work with your CF care team for healthcare coverage through private insurance and patient assistance programs.
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CF Healthcare Coverage: It Takes Teamwork Part 2:
Legal Issues and Government Programs
April 30, 2009
Beth Sufian, JD, CF Legal Information Hotline and Carol Chace, LICSW, Children’s National Medical Center
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Learn about your legal rights and how to work with your CF care team for healthcare coverage through state and government programs.
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Adult Nutrition and Fertility Issues for People with CF Part 1:
Fertility Information for Males with CF
February 3, 2009
Tom Walsh, M.D.; Moira Aitken, M.D.
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Learn about the different male fertility issues faced by men with CF and how to work with your healthcare center team to get the optimal care and support.
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Adult Nutrition and Fertility Issues for People with CF Part 2:
Fertility Information for Females with CF
February 3, 2009
Edith Cheng, M.D and Moira Aitken, M.D.
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Learn about the different female fertility issues faced by women with CF and how to work with your healthcare center team to get the optimal care and support.
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Adult Nutrition and Fertility Issues for People with CF Part 3:
Adult Nutrition
February 3, 2009
Cathy Seifert, R.D.
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| Learn about the importance of adult nutrition to maintain good health. |
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CF Research: Progress, Hope and Challenges Today
November 12, 2008
Speakers: Robert J. Beall, Ph.D.; Preston W. Campbell, III, M.D.; Barbara Allen; Laura Homassel
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| Learn about the CF Foundation's latest progress with CF drug discovery and development. Updates include information about VX-770, VX-809 and Denufosol. |
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CF Lung Health Anthology Part 1:
Secondhand Smoke and CF
April 30, 2008
Speakers: Michael Schechter, M.D, M.P.H.
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| Hear about the hazards of secondhand smoke and smoking in people with CF, and answer questions like, “What if a member of our family smokes, but only does it outside, or not when my child is around?” and “How far away from a smoker do you have to be to be safe?” |
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CF Lung Health Anthology Part 2:
Exercise and CF
April 30, 2008
Speakers: Anne Mejia Downs, P.T, M.P.H., C.C.S.
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| Learn about how exercise can help a person with CF, watch demonstrations of simple stretching and muscle-building exercises and hear how an adult with CF fits exercise into life. |
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CF Lung Health Anthology Part 3:
Chronic Meds to Maintain Lung Health
April 30, 2008
Speakers: Patrick Flume, M.D.
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| Hear about the medications people with CF should talk to their care center about taking every day based on recommendations by the latest research and experts in CF. |
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CF Lung Health Anthology Part 4:
Airway Clearance Techniques (ACT)
April 30, 2008
Speakers: Mary Lester, R.R.T.
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| Watch how one family fits the different Airway Clearance Techniques (ACT) into their busy daily life. |
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Navigating the Hills and Valleys
of CF Lung Disease
August 16, 2007
Speakers: Nathan Kraynack, M.D.; Betsy Bryson R.N., C.P.N.P.; Christine Singh, R.N., C.N.P.
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| Staff from the Akron Children’s Hospital discusses their efforts to define, standardize and treat pulmonary exacerbations to improve lung function. Tips on how to improve lung health are also discussed. |
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Using Nutrition to Stay Healthy With CF
June 12, 2007
Speakers: Drucy Borowitz, M.D.; Chris Coburn-Miller, M.S.R.D.; Joe Cronin, M.D.
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| Watch the discussion about the latest progress in nutrition research and guidelines in the field, and get tips on how to incorporate high-calorie foods into busy lifestyles. Also, learn about new enzymes, vitamins and supplements. |
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Quality CF Care is More Than the Numbers
November 28, 2006
Speakers: H. Worth Parker, M.D.; Don Kreis; Bruce Marshall, M.D.; Leslie Hazle, M.S., R.N.
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| Stressing the importance of home care and quality improvement measures in centers, the roll-out of the release of health measures of all accredited care centers and what the numbers really mean is addressed here. |
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Building Life Skills to Manage CF
August 15, 2006
Speakers: Joan Finnegan Brooks; Dianne Silliman;
Joanne Stevens, L.C.S.W.; Leslie Hazle, M.S., R.N.
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| Fitting time-consuming therapies into a busy day can be hard – this panel of a social worker, an adult with CF, and a parent of a child with CF discuss how to fit CF care into life, so there’s still time left for work and play. |
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Patient Advocacy: Issues & Answers for CF
March 28, 2006
Speakers: Beth Sufian, J.D., Suzanne Cumming, R.N., B.S.N., Leslie Hazle, M.S., R.N.
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| Information about healthcare, insurance, career and employment issues, and school and college issues are highlighted by a nurse and a lawyer to explore the different financial options available. |
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One Team's Story: Raising The Bar For CF Care
April 5, 2005
Speakers: Jim D. Acton, M.D., Patricia Joseph, M.D., Bruce Marshall, M.D., Honor Page, Lisa Reuss
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| This Web cast highlights quality improvement endeavors and the initiative to implement quality improvement measures at all care centers. |
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Downloads and System Requirements
Download Links: (Download the Player appropriate to your operating system)
Windows Media Player
System Requirements & Settings:
64 MB RAM (128 or 256 recommended) Pentium II, III, IV (Pentium III or above recommended) Speakers and a sound card Dial-up, DSL/Cable Modem or greater connection Microsoft Internet Explorer 5.5 or greater Windows Media Player 9 or higher Please close all other applications in order to improve system performance
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