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About the Cystic Fibrosis Foundation

About the Foundation

Our Mission

The mission of the Cystic Fibrosis Foundation is to cure cystic fibrosis and to provide all people with the disease the opportunity to lead full, productive lives by funding research and drug development, promoting individualized treatment, and ensuring access to high-quality, specialized care.

We Are Adding Tomorrows

The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for cystic fibrosis. We fund more CF research than any other organization, and nearly every CF drug available today was made possible because of Foundation support.

We are a nonprofit donor-supported organization dedicated to attacking cystic fibrosis from every angle. Our focus is to support the development of new drugs to fight the disease, improve the quality of life for those with CF, and ultimately to find a cure. 

The Foundation's drug development success has been recognized by Harvard Business School and by publications such as Forbes and The Wall Street Journal.

Based in Bethesda, Md., the Foundation funds and accredits a national care center network that has been recognized by the National Institutes of Health as a model of care for a chronic disease.

The Cystic Fibrosis Foundation is one of the most efficient organizations of its kind and is an accredited charity of the Better Business Bureau's Wise Giving Alliance.

Hope in Action

Until we end this disease, our team will work tirelessly to extend and enhance life for those with cystic fibrosis by functioning as: 

Building on Success

  • When the Foundation was established in 1955, children with CF rarely lived long enough to attend elementary school. Due in large part to the Foundation's aggressive investments in innovative research and comprehensive care, many people with the disease are now living into their 30s, 40s and beyond.

  • In 1989, CF Foundation-supported scientists discovered the defective gene that causes cystic fibrosis — a monumental breakthrough on the road to a cure.

  • The Foundation played an integral role in the development and FDA approval of a number of therapies that are now part of regular treatment regimens for many with CF. The Foundation has a robust pipeline of promising potential drugs that target the disease from every angle.

  • The Foundation helped support the development of the groundbreaking drug ivacaftor (Kalydeco™), the first to treat the underlying cause of CF in a small group of people with the disease. The Foundation also is supporting research to treat the root cause of the disease in more people living with CF. We will not rest until we find a cure for all people with CF.

Still Making Progress

We are proud of our achievements. But, we still have much to do. Learn more about what the Foundation does to fight cystic fibrosis and how you can get involved.

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The Cystic Fibrosis Foundation is an accredited charity of the Better Business Bureau.