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We are here to help people with CF get the insurance coverage they need. Hear how the Foundation helped the Cox family.

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UPDATE: Temporary Pre-Existing Condition Insurance Plan Program Extended to March 31, 2014

UPDATE: Jan. 15, 2014

Coverage under the temporary, federal Pre-Existing Condition Insurance Plan (PCIP) has been extended to March 31, 2014. The story below has been updated to reflect this change.


With the rollout of the Affordable Care Act (ACA) and the opening of health insurance marketplaces, people with pre-existing conditions such as cystic fibrosis are now able to purchase health insurance coverage regardless of their health condition.

Coverage under the temporary, federal Pre-Existing Condition Insurance Plan (PCIP) has been extended until March 31, 2014, in most states. If you have PCIP coverage and would like to extend it, contact your insurance plan administrator.

PCIP was created when the ACA was signed into law in 2010 to help people with pre-existing conditions purchase health insurance coverage until the law’s new options and protections became available. Under the ACA, people with pre-existing conditions cannot be denied coverage because of their health status unless they have a grandfathered plan — one that was issued prior to March 23, 2010.

If you are enrolled in PCIP and want to start receiving new health insurance coverage on April 1, 2014, you must enroll in a new plan by March 15, 2014. To find a health insurance marketplace, visit

People with CF and their families can learn more about coverage options at the CF Foundation’s new Health Insurance & the Affordable Care Act page and can compare marketplace plans using the marketplace insurance assessment tool.

If you have specific questions or concerns regarding your health insurance coverage, please visit the Foundation’s Patient Assistance Resource Center, call 1-888-315-4154 or email

For more information on PCIP coverage, please visit


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