Cystic Fibrosis Foundation - Click here for homepage
 | Stay Informed  |  Volunteer  |  Clinical Trials
ABOUT CYSTIC FIBROSIS ABOUT THE CYSTIC FIBROSIS FOUNDATION LIVING WITH CYSTIC FIBROSIS TREATMENTS RESEARCH OVERVIEW GET INVOLVED!
In This Section
Message from the President
Foundation Leadership
Annual Report & Financial Statements
Publications & Videos
Press Room
News & Events
2010 News Archive
2009 News Archive
2008 News Archive
2007 News Archive
2006 News Archive
2005 News Archive
About 65 Roses
Locations
Governance & Policies
Milestones Campaign
Employment Opportunities
Contact Us
Quick Links
Find A Chapter
Great Strides
Become a Corporate Partner
Volunteer
Employment Opportunities
Become an Advocate
Find A Clinical Trial
Care Center Network
Drug Development Pipeline
CF Services Pharmacy
Make a Donation
Find a Chapter
Get Connected

 Lewis Black and others in the CF community share their dreams of a cure for CF. Click to watch.
 Lewis Black and others in the CF
 community share their dreams of
 a cure for CF.

Join us on YouTube at http://www.youtube.com/CysticFibrosisUSA Join us on YouTube





Join us on Facebook at www.facebook.com/CysticFibrosisFoundation Join us on Facebook





Follow us at twitter.com/CF_Foundation Follow us on Twitter
Display a Printer Friendly Version This Page

CF Foundation Takes GREAT STRIDES for Cystic Fibrosis

BETHESDA, Md.; April 5, 2006 — Today, the Cystic Fibrosis Foundation announced the kick-off of GREAT STRIDES: Taking Steps to Cure CF. This national fund-raising program, now in its 18th year, aims to raise $32.5 million in 2006 to support vital cystic fibrosis (CF) research,education and care programs.

GREAT STRIDES is the CF Foundation’s largest and fastest growing signature event. Tens of thousands of walkers are expected to turn out at the more than 500 sites nationwide from March through June. Some walks will coincide with National Cystic Fibrosis Awareness Month in May. More than 88 cents of every dollar raised by the CF Foundation is used to fund CF research and care programs. GREAT STRIDES 2006 is sponsored nationally by American Airlines® and Solvay Pharmaceuticals.

“Our organization was built by volunteers, both families affected directly by cystic fibrosis,and many others as well, who are committed to raising the dollars that fuel our cutting-edge research," said Robert J. Beall, Ph.D., president and CEO of the CF Foundation. "GREAT STRIDES brings people together to walk that extra mile as a community. Their dedication continues to make this event a rousing success every year."

More than 30,000 people nationwide have this life-threatening disease. In addition, more than 10 million Americans are genetic carriers. Carriers each have one copy of the defective CF gene, but do not have the disease and its symptoms. It takes two copies of the gene for a child to be born with cystic fibrosis. For people with CF, the defective gene causes the body to produce a faulty protein that leads to abnormally thick, sticky mucus that clogs the lungs and can result in fatal lung infections. The mucus also obstructs the pancreas, causing difficulty for a person to absorb nutrients in food.

With the support of the CF Foundation, there has been tremendous progress in cystic fibrosis research and care. The median age of survival has improved from early childhood in the 1950s to the mid-30s today. However, CF continues to be a critical health matter, as most individuals with cystic fibrosis must battle lung disease for their entire lives. At least one person dies each day from this disease.

To get involved with GREAT STRIDES, call (800) FIGHT CF, or visit www.cff.org/great_strides.

 

Make a donation to the Cystic Fibrosis Foundation.
Sign up to get the latest news and information.
It's Time to Take GREAT STRIDES! Your steps TODAY will help find a cure for cystic fibrosis. Register for a walk near you!
Help discover and develop potential new treatments for CF by enrolling in a clinical trial. Click to learn more.
Cystic Fibrosis Services Pharmacy
The Cystic Fibrosis Foundation is an accredited charity of the Better Business Bureau.   The Cystic Fibrosis Foundation has a 4-star rating from Charity Navigator, America's largest independent evaluator of charities.