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Teens Visit Capitol Hill to Urge Support for their Siblings with CF

October 26, 2009

A group of teenagers whose siblings have cystic fibrosis visited Capitol Hill to lobby their members of Congress at the CF Foundation’s first Teen Advocacy Day for CF on Tues., Oct. 20.

Led by Advocacy Chair Amy Barry and her son Will Barry, age 15, the teens met with their members of Congress to share what it’s like for their families to live with CF and their hope for a cure or control for the disease.

They also asked their members of Congress to support the “Improving Access to Clinical Trials Act of 2009” (H.R. 2866/S. 1674) and join the House Congressional Cystic Fibrosis Caucus.

Just two days after meeting with 32 Congressional offices, an extraordinary 10 members of Congress signed on as co-sponsors of the clinical trials bill, and a Representative in the House joined the CF Caucus.

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Click play to view photos from Teen Advocacy Day.

     

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